B12 low-

[Guest guest]

I have been taking Arava for couple months,prednisone for 4 yrs.

presently 10 mg.and Methotrexate 20mg and folic acid for Stills.I been

having burning feet..rheumy sent to foot doctor. She doesn't do feet.

Well after 3 months of neuropathy symptoms meds( Neurtonin,Lyrica).

Foot doctor orders blood work finds B12 low. waiting on my GP

appoinment.

Why couldn't the rheumy see this. I get blood work every six weeks for

fun?

I read methotrexate can lower.

[Guest guest]

My B12 was so low, the doc said it was " non-existent " .  I have to get a B12

injection every month.  I have taken Methotrexate off and on, but wasn't on it

when he discovered it. 

 

Good luck

Gail (KY)

Subject: B12 low-

To: Stillsdisease

Date: Tuesday, December 9, 2008, 7:06 PM

I have been taking Arava for couple months,prednisone for 4 yrs.

presently 10 mg.and Methotrexate 20mg and folic acid for Stills.I been

having burning feet..rheumy sent to foot doctor. She doesn't do feet.

Well after 3 months of neuropathy symptoms meds( Neurtonin,Lyrica) .

Foot doctor orders blood work finds B12 low. waiting on my GP

appoinment.

Why couldn't the rheumy see this. I get blood work every six weeks for

fun?

I read methotrexate can lower.

[Guest guest]

I have burning feet (among other things). I was diagnosed with small fiber

neuropathy (via biopsy). I started taking gabapentin. Too early to tell for sure

but it seems to work - my feet feel " disconnected " but no pain anymore. Talk to

your neurologist. I have no idea what my B12 level is - making note to ask.

From: Stillsdisease [mailto:Stillsdisease ] On

Behalf Of Leon

Sent: Tuesday, December 09, 2008 4:06 PM

To: Stillsdisease

Subject: B12 low-

I have been taking Arava for couple months,prednisone for 4 yrs.

presently 10 mg.and Methotrexate 20mg and folic acid for Stills.I been

having burning feet..rheumy sent to foot doctor. She doesn't do feet.

Well after 3 months of neuropathy symptoms meds( Neurtonin,Lyrica).

Foot doctor orders blood work finds B12 low. waiting on my GP

appoinment.

Why couldn't the rheumy see this. I get blood work every six weeks for

fun?

I read methotrexate can lower.

[Guest guest]

hi, if you start to find that the gabapentin doesn't work after a while ask

if Topomax is something that will work.

I also have neuropathy and after being on gabapentin for a while, it wasn't

working unless I was on a really high dose (which can make you gain a lot of

weight). I asked if there was something else I could take that would work

better at a lower dose and not make me gain weight - the answer - topomax-

works great...

just an fyi for you to be aware of.

take care,

Alli

On Wed, Dec 10, 2008 at 10:20 AM, Garber, Mikhail wrote:

> I have burning feet (among other things). I was diagnosed with small

> fiber neuropathy (via biopsy). I started taking gabapentin. Too early to

> tell for sure but it seems to work - my feet feel " disconnected " but no pain

> anymore. Talk to your neurologist. I have no idea what my B12 level is -

> making note to ask.

>

> From: Stillsdisease <Stillsdisease%40yahoogroups.com>[mailto:

> Stillsdisease <Stillsdisease%40yahoogroups.com>] On Behalf

> Of Leon

> Sent: Tuesday, December 09, 2008 4:06 PM

> To: Stillsdisease <Stillsdisease%40yahoogroups.com>

> Subject: B12 low-

>

> I have been taking Arava for couple months,prednisone for 4 yrs.

> presently 10 mg.and Methotrexate 20mg and folic acid for Stills.I been

> having burning feet..rheumy sent to foot doctor. She doesn't do feet.

> Well after 3 months of neuropathy symptoms meds( Neurtonin,Lyrica).

> Foot doctor orders blood work finds B12 low. waiting on my GP

> appoinment.

> Why couldn't the rheumy see this. I get blood work every six weeks for

> fun?

> I read methotrexate can lower.

>

>