Dr Fell/ people going for an endoscopy

[Guest guest]

Darla,

I’ve just replied to this and don’t know if I’ve sent it to

the list or not. der!

In

the reply I forgot to say that I wanted to tell people that the nurse told me

that I should have rung the ward and said that Tom had autism and they would

have let us come loads later. That would have had two really massive advantages

– Tom wouldn’t have had to wait around in a ward all day and, we

wouldn’t have had such a long day on top of our 10 hours of driving from Plymouth and back, so ring and

tell them if you’re going. (They also let Tom go first in the queue

because of his autism)

Take

Also,

they didn’t send me any information on general anaesthesia before I got

there and they should have – so ring and get this if it doesn’t

come.

I

didn’t take much food for Tom thinking he wouldn’t want it and I’ve

never seen him so ravenous. I didn’t even have a proper meal for him and

he had to stuff himself full of crisps, biscuits and bananas – couldn’t

buy anything diet friendly in any shops. If he was going to vomit that food

really wouldn’t have helped. I would take yoghurt/ fruit puree/ smoothie type things to see if he’s going to vomit

plus a BIG proper meal if he was going to do it again.

Also

take LOTS of favourite toys and stims for when they

come round and as the day can be long if lots of emergencies turn up. I wish we

had taken his portable DVD player and favourite DVDs.

Oh

and I forgot his shoes – don’t do that.

Sara

xxx

-----Original

Message-----

From: Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] On Behalf Of rexel45@...

Sent: 07 March

2008 14:59

To:

Autism-Biomedical-Europe

Subject: Re:

Dr Fell

Sara,

apparently

the anaesthesia can " reset " the brain and body (in children) so that

the body thinks it's had a full nights sleep! that happened to the

first time he had a general anaesthesia, he then did not sleep that night but

he sure was happy when he woke up.

Glad

they didn't find anything. That's good news, isn't it?

Darla

xx

In a

message dated 07/03/2008 14:55:15 GMT Standard Time, Moroza-Tiscali (DOT) co.uk

writes:

We’ve

just come back from Tom’s endoscopy. I don’t think he does an

intestinal permeability test. He doesn’t do the scoping so we

didn’t see him yesterday and so I didn’t have any discussion about

constipation and yeast. Doctor Fell was careful to tell us that there was no

link between autism and gut disorders. He seems nervous that so many patients

with autism from all over the country are coming to see him. he

looks at their gastro problems and ignores the autism and investigates/ treats

accordingly. I don’t think he has any views that are different from

mainstream except that he is helping our kids.

I

was very nervous about Tom having a general anaesthetic and sort of expected a

really bad reaction but Tom seemed to wake up from the anaesthetic tons

better!!!! That was yesterday and today he is the best he’s ever been.

What could that be? Pain relief? Oxygen?

They didn’t see anything at all down there by the way,

SARA