Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Hi Jacki, My daughter's name is Eiddelyn. Your info is quite reassuring. I am sure you understand my apprehensions about body cast and th possible discomfort it will give (and us). We are in southern california. are you nearby? Dr. Kishan is seeing her. I am also starting to surf the web regarding neurofibromatosis. Looks like it is only in UCLA that has a special clinic for this. Dr. Kishan is seeing her for her scoliosis but I am going to another Dr. for a second opinion on March. How is your daughter now? Were they really able to correct her curvature? Ethelyn jabostock wrote: Good to meet you and your daughter - My daughter wore a brace for about 18 months - 23/7 and it may be slowed down her scoliosis a little, but her curves did continue to increase! She wore a Boston TLSO and was 3 yrs old at the time. By 4.5 her curves had increased from 35 to nearly 50 degrees! I knew that for her kind of scoliosis that the brace was a waste of time. She had a spinal MRI (with anesthesia at 3.5) without any problems. This ruled out any other abnormalities of her spine. She wore a total of 4 casts, and actually liked them - I'd read that kids did prefer them to bracing, but didn't know if that was indeed the case! She said that she actually felt more comfortable in a cast! The hard part was not being able to bathe and swim :-( The casts were applied under anesthesia - again without any problems for my little girl. Because of her age and her underlying medical condition (Marfan Syndrome), we knew that " casting for a cure " wasn't going to be for her, but it did keep her scoliosis at a much more manageable level until her Ortho's had a new plan. Please let us know where you are, and which doctor/s you are seeing. Good to meet you - and good luck with your research. Jacki > > Hello everybody, > > I am Ethelyn I learned about this group while I was surfing the net for my daughters conditon. She is 3 1/2 y.o. and was diagnosed to have scoliosis. This was last Feb .27. Actually the scoliosis xray was done last Oct. 2007 and I was told that the angle is 32 degrees. It was an incidental finding when she had a chest x-ray; that means she has no other noticeable signs/symptoms. About two days ago though I already noticed that she is leaning to her left. > > The plan is for her to have a body cast which will be done under general anesthesia and this will be done on April 4. This really makes me worried considering that she is young and has to undergo this procedure. The orthopedic surgeon said adjustment will be done every 2-4 months. On May 5 MRI of the spine will also be done because she also has neurofibromatosis. This again will be done under IV sedation. > > I am wondering how did your babies " deal " with the cast on their body 24/7 or should I say how did you make your babies be able to take the ordeal. Are there anybody who had a good experience with braces? How's the growthof your children. Will it not be stunted by the cast. Is there anybody who's child has also neurofibromatosis. > > My daughter was only seen by one orthopedic surgeon and when I expressed a lot of concern for the procedure her casting was moved from March 18 toApril 4. For fear that further delay might worsen her case I did not decline the upcoming procedure. However, I have a schedule with another orthopedic surgeon on March 20. I am not sure what will the result be for this second consult with another doctor. > > Thanks lot everybody. I have read a lot of messages and all of your messages to everybody are very supportive and informative. > > Sincerely, > Ethelyn > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 I think you're in great hands w/Dr. Kishan! ethelyn billones wrote: Hi Jacki, My daughter's name is Eiddelyn. Your info is quite reassuring. I am sure you understand my apprehensions about body cast and th possible discomfort it will give (and us). We are in southern california. are you nearby? Dr. Kishan is seeing her. I am also starting to surf the web regarding neurofibromatosis. Looks like it is only in UCLA that has a special clinic for this. Dr. Kishan is seeing her for her scoliosis but I am going to another Dr. for a second opinion on March. How is your daughter now? Were they really able to correct her curvature? Ethelyn jabostock wrote: Good to meet you and your daughter - My daughter wore a brace for about 18 months - 23/7 and it may be slowed down her scoliosis a little, but her curves did continue to increase! She wore a Boston TLSO and was 3 yrs old at the time. By 4.5 her curves had increased from 35 to nearly 50 degrees! I knew that for her kind of scoliosis that the brace was a waste of time. She had a spinal MRI (with anesthesia at 3.5) without any problems. This ruled out any other abnormalities of her spine. She wore a total of 4 casts, and actually liked them - I'd read that kids did prefer them to bracing, but didn't know if that was indeed the case! She said that she actually felt more comfortable in a cast! The hard part was not being able to bathe and swim :-( The casts were applied under anesthesia - again without any problems for my little girl. Because of her age and her underlying medical condition (Marfan Syndrome), we knew that " casting for a cure " wasn't going to be for her, but it did keep her scoliosis at a much more manageable level until her Ortho's had a new plan. Please let us know where you are, and which doctor/s you are seeing. Good to meet you - and good luck with your research. Jacki > > Hello everybody, > > I am Ethelyn I learned about this group while I was surfing the net for my daughters conditon. She is 3 1/2 y.o. and was diagnosed to have scoliosis. This was last Feb .27. Actually the scoliosis xray was done last Oct. 2007 and I was told that the angle is 32 degrees. It was an incidental finding when she had a chest x-ray; that means she has no other noticeable signs/symptoms. About two days ago though I already noticed that she is leaning to her left. > > The plan is for her to have a body cast which will be done under general anesthesia and this will be done on April 4. This really makes me worried considering that she is young and has to undergo this procedure. The orthopedic surgeon said adjustment will be done every 2-4 months. On May 5 MRI of the spine will also be done because she also has neurofibromatosis. This again will be done under IV sedation. > > I am wondering how did your babies " deal " with the cast on their body 24/7 or should I say how did you make your babies be able to take the ordeal. Are there anybody who had a good experience with braces? How's the growthof your children. Will it not be stunted by the cast. Is there anybody who's child has also neurofibromatosis. > > My daughter was only seen by one orthopedic surgeon and when I expressed a lot of concern for the procedure her casting was moved from March 18 toApril 4. For fear that further delay might worsen her case I did not decline the upcoming procedure. However, I have a schedule with another orthopedic surgeon on March 20. I am not sure what will the result be for this second consult with another doctor. > > Thanks lot everybody. I have read a lot of messages and all of your messages to everybody are very supportive and informative. > > Sincerely, > Ethelyn > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Hi Ethelyn, Please go to the FILES section of this group to download/read a published medical journal titled " Growth as a corrective force in the early treatment of progressive infantile scoliosis, " by Mehta. May I also recommend that you view " A New Direction " dvd, which will help you better understand the principles of this gentle, effective treatment. The true name of this treatment is " Early Treatment with the Mehta Method " . Some doctors are still terming this treatment " Risser Casting " because there exists only one billing code for a plaster cast & scoliosis. The code is 20910 and its under 'Risser " . Risser casting is an old way of casting, used to maintain the patients curvature, or hold a surgical procedure (fusion/hardware). Early Treatment with the Mehta Method is very different from Risser casting, if done properly. Please read the article I recommended and let us know if you have any questions. By the way, Dr. Kishan was at a training seminar in Nov. 05 with Dr. Mehta and is currently applying treatment early to his young patients. Welcome to the group! HRH > Hi Jacki, > > My daughter's name is Eiddelyn. Your info is quite reassuring. I am > sure you understand my apprehensions about body cast and th possible > discomfort it will give (and us). We are in southern california. are > you nearby? Dr. Kishan is seeing her. I am also starting to surf the > web regarding neurofibromatosis. Looks like it is only in UCLA that has > a special clinic for this. Dr. Kishan is seeing her for her scoliosis > but I am going to another Dr. for a second opinion on March. How is > your daughter now? Were they really able to correct her curvature? > > Ethelyn > > > > > jabostock wrote: > Good to meet you and your daughter - > My daughter wore a brace for about 18 months - 23/7 and it may be > slowed down her scoliosis a little, but her curves did continue to > increase! She wore a Boston TLSO and was 3 yrs old at the time. > By 4.5 her curves had increased from 35 to nearly 50 degrees! I knew > that for her kind of scoliosis that the brace was a waste of time. > > She had a spinal MRI (with anesthesia at 3.5) without any problems. > This ruled out any other abnormalities of her spine. > > She wore a total of 4 casts, and actually liked them - I'd read that > kids did prefer them to bracing, but didn't know if that was indeed > the case! > She said that she actually felt more comfortable in a cast! The hard > part was not being able to bathe and swim :-( > The casts were applied under anesthesia - again without any problems > for my little girl. > > Because of her age and her underlying medical condition (Marfan > Syndrome), we knew that " casting for a cure " wasn't going to be for > her, but it did keep her scoliosis at a much more manageable level > until her Ortho's had a new plan. > > Please let us know where you are, and which doctor/s you are seeing. > > Good to meet you - and good luck with your research. > > Jacki > > >> >> Hello everybody, >> >> I am Ethelyn I learned about this group while I was surfing the > net for my daughters conditon. She is 3 1/2 y.o. and was diagnosed to > have scoliosis. This was last Feb .27. Actually the scoliosis xray > was done last Oct. 2007 and I was told that the angle is 32 degrees. > It was an incidental finding when she had a chest x-ray; that means > she has no other noticeable signs/symptoms. About two days ago > though I already noticed that she is leaning to her left. >> >> The plan is for her to have a body cast which will be done under > general anesthesia and this will be done on April 4. This really > makes me worried considering that she is young and has to undergo > this procedure. The orthopedic surgeon said adjustment will be done > every 2-4 months. On May 5 MRI of the spine will also be done > because she also has neurofibromatosis. This again will be done > under IV sedation. >> >> I am wondering how did your babies " deal " with the cast on their > body 24/7 or should I say how did you make your babies be able to > take the ordeal. Are there anybody who had a good experience with > braces? How's the growthof your children. Will it not be stunted by > the cast. Is there anybody who's child has also neurofibromatosis. >> >> My daughter was only seen by one orthopedic surgeon and when I > expressed a lot of concern for the procedure her casting was moved > from March 18 toApril 4. For fear that further delay might worsen > her case I did not decline the upcoming procedure. However, I have > a schedule with another orthopedic surgeon on March 20. I am not sure > what will the result be for this second consult with another doctor. >> >> Thanks lot everybody. I have read a lot of messages and all of > your messages to everybody are very supportive and informative. >> >> Sincerely, >> Ethelyn >> >> >> --------------------------------- >> Looking for last minute shopping deals? Find them fast with Yahoo! > Search. >> >> Quote Link to comment Share on other sites More sharing options...
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