Adult with CMT 1A who is my child

[Guest guest]

Hello Everyone,

I have not talked on this list for a time. Not that I have not been reading

because I have. I run a childcare business out of my home which is pretty full

time. I work from 6am in the morning until 8pm at night plus Saturdays. So it

leaves me utterly exhausted some days! The best part I get to play all day!!!

What fun getting paid to play!

On another note I have a son who has CMT 1A as do I. He is now 18 years old--a

legal adult, yet still my child in my heart.

However, my question to the group is: what do you do? It is time for being out

on his own to establish his independence yet affordability is almost impossible

with apartments. He is fine to stay with us we love him very much, yet we want

him to be self sufficient. He does very well with working in a bakery. Yet, that

is exhausting us as his shift is 5pm-12midnight and he can not drive due to his

childhood epilepsy. So we live in NH. Does anyone know of any services that

could help us out?

Thanks so much

Heidi from NH mother of 5