Guest guest Posted October 1, 2006 Report Posted October 1, 2006 Hello everyone: I have not been posting for quite a while. Lot of exciting stuff happening on the research front. To Gretchen: I know this was back a few months but thank you for that write up on me on HNF. Sorry for the delayed thanks. Now for my dream job. As some of you know CMT has placed me in a wheelchair and unable to walk at all, and very weak forearms and hands. So job prospects did not seem that great for me. However, back in December 2003 I found a program called Career Assist Program for People with Disabilites with my Provincial Government, Province of Manitoba, Canada. In July 2005 I started a 1 year term in the program working for one of the largest departments (Transportation and Government Services, soon to be Infrasture and Transportation) developing and maintaining their public and internal web sites. In order to accomodate my disabilty, my department provides me with a seperate laptop and secure internet contection so that I can work 100% of the time from home. This helps with fatigue because there is no travel, etc, plus flex time if I need to lie down for 1/2 hour or so. Now 1 year later I signed on with the department as a PERMENANT employee, with full benefits, and pension. Permenant means even if my position is no longer they must continue to pay equivilant and find me a new position. I am not sure about other countries but in Canada government jobs at any level tend to be golden. However, this job came to me after 15 years of garbage jobs, long terms of unemployment and plenty of education. But patiences rewards. Now my next dreams, win the lotto and the biggest of all cure CMT and walk again. My predicitions, lotto probably not, curing CMT most definately! Thanks for reading. Take care Quote
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