knowing about CMT

[Guest guest]

Hi in Ontario with warm feet

Your comment in a recent email struck me. I am very happy you find

helpful and that you appreciate what I share.

It is not so much that I know more than doctors, but perhaps due to

the fact I have been reading and studying CMT since 1980 or so, and

also have lived with a CMT diagnosis of my own since 1962. And, as you

know, I am very interested in following research, especially new

trends in symptom management, gene therapy, nerve growth factors and

the use of vitamin therapy.

Any doctor can access the research information. However, it is only

most likely those actually doing the research will access it more.

I've made some wonderful friends with doctors and exchanged

information and also ask tons of questions! Perhaps I have just had

more time to really read research thoroughly, and then also my writing

on CMT has helped me to more fully understand. (lol, if a writer can't

understand a 'topic', no one else will be able to either!)

I am greatly appreciative of your kindness in a recent email, and only

hope I can continue to be of service here at and hopefully from

my studies, learn even more. Really, we with CMT, are the best

teachers for each other Doctors should join to find out what

is 'really' going on!

~ Gretchen in So. California