Re: waiting to get worse or better

[Guest guest]

Gretchen,

You mean to tell me that I might be able to get better than worse?

If I would have even thought that maybe I wouldn't be so down and out. It seems

I'm just waiting to get worse, but then again you sound like you are the not the

norm, but the exception to the rule. Either way, that gives me lots of hope.

I'm only 3 miles from a pool, but haven't been there. Maybe it's time to go.

in the Keys

[Guest guest]

,

You're wasting precious time " waiting " to get worse. I did this for a

number of years, and an odd thing happened. I slowly started really

caring for body, mind and soul and I can say truthfully at 54 I am

better than I was at 34.

Remember, I was diagnosed as a child. I've had alot of years to work

things out with CMT and I work very hard now to care for myself in many

ways.

There isn't a 'norm' for CMT. The syndrome is so varied, and at times,

idiosyncratic. CMT can be effetively managed, but you will need to work

on this. There are no " CMT rules " - no one, no doctor, or anyone else

can tell you how CMT will play out in your life. As a family friend and

neurosurgeon by profession once told me " Gretchen, you are writing your

own CMT textbook as you live " .

I stopped smoking, drinking, and completely changed both my inner and

outer lives. Maintaining an attitude of gratitude is extremely

important to my overall health.

, if you've got access to a pool so close, by all means use it.

Start slow, just try some walking in the shallow end for starters.

Exercise has really been a key for me in wellness.

~ Gretchen