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Posted

--- In , " bellafleurettes " >

> Measures are always a challenge. Here is a small compilation

> summary from my classroom workbook I created for students. I

> suggested they copy and cut out and tape to a 3x5 card to keep by

> their blending table - seemed to help a good deal.

>

> Elemental scale

> 1/3 dram = 1 ml

> 1 gram = 1 ml

>

> graduating scale

> 1/2 dram = 1/16 oz = 1.85 mls

> 5/8 dram = 2.31 mls

> 1 dram = 1/8 oz = 3.70 mls

> 2 drams = 1/4 oz = 7.5 mls

> 1/3 oz = 10 mls

> 4 drams = 1/2 oz = 15 mls

> 9/10 oz = 29 mls

> 8 drams = 1 oz = 30 mls

>

This is helpful, but one must keep in mind that these conversions

between mass and fluid volume make the assumption that one is working

with water specifically (for these values to work all of the time).

Some essences are very close to water in gravity, but some are quite

off.

And if you were to count drops of different essences in an attempt to

calibrate drops per gram (or oz), there'd be a range of values

depending on the essence, and this would again illustrate the

disparity between mass and volume. There's wiggle room sure, but

there are some instances where fluid volume just won't cut it, as I

learned early on in soapmaking ;)

sara

  • 2 years later...
Posted

Hi everyone!!

When my back suddenly started giving wave pains today, for a split second I was

definitely tempted to curse and crib and lament to myself about the

'un-shareable' hassles of CMT. Guess what came to my immediate rescue? ! I

reminded myself... 'There are scores of others, too! Am not the only one'! :) WE

ROCK!!!

Well, I have a question here. I am not a severely affected person. Got problems

walking, slight hearing loss, and (brrr!) getting back pain these days. As it

is, my daily routine doesn't include many CMT stopping measures. In the sense

that I do manage CMT but nothing is being done to slow down the progression. I

do aerobics, go for walk wearing AFOs and make sure that I climb stairs

sometimes to be in practice. Vit C, of course yes. Nothing else, really. Should

I include something more...? Massage or any special form of exercise?

Secondly, does CMT progress throughout life or does it slow down after

adolescence?

Thanks

Smiles!!

Reema

Posted

Hi Reema,

Love your enthusiasm for ! No kidding WE ROCK!

All of the CMT 'information' basically states the same thing - 'CMT

is progressive'. It ends there. That's because 'progression' in a

person cannot really be measured and no doctor on this earth

can 'predict' how, when, where, why and IF this 'progression' will

occur. It is all up to our unique individual genetic code.

I will tell you when I was first diagnosed by Marshall Urist of Los

Angeles (now deceased) he told me my CMT " may be progressive OR not

at all " . He told me to swim alot, walk in wet sand (strengthens

ankles) and he did my successful tendon surgery.

I got to a point in my life I let that 'demon' " Progression " fly out

the window and got on with my life. A word like " progression " has too

many 'negative' connotations and I can not live in negativity, but

only reality, one day at a time.

Science has yet to discover a way to slow CMT - however, the mice

study with Vitamin C a few years ago showed completed arrestment

(that means CURE) after 30 generations of mice with CMT were given

the C.

I would suggest perhaps you include Vitamin E. It helps with the

absorption of C and in itself it has some good properties which

benefit skeletal muscle.

Exercise wise - try some Aquatics - I don't mean just swimming, I

mean a cardio program in a pool. (no AFOs needed in the pool)

Although swimming is excellent too. Perhaps you could meet with a

physical therapist who could develop a exercise program for you.

I have personally had virtually no progression since I was in my

teens, and am now 54. Over the years I changed what I ate and drank,

learned to get more sleep, and started to care more about myself, in

many ways. Each one of us is different in our needs - my biggest need

for optimal health is regular sleep.

About your backpain - this may or may not be CMT related. Mine was not. I had a

herniated disc that was causing the pain. Get to an orthopedist, get checked for

scoliosis and other stuff. Also, just wondering when your last AFO checkup was.

They might need some adjustments. Also, how is your posture? Sitting up

straight, or hunched over? Back to exercise, but Mat-based Pilates is great for

this and strengthening your inner core which controls back muscles.

~ Gretchen

  • 2 weeks later...
Posted

Reema,

I wish!!

CMT is unpredictibale, the medical books say it is a slowly progressive

disorder. Aww but that is not always the case I have learned after 8 years on

the internet.

Posted

Ed

That is a really good way to describe how CMT works (or mine anyway) I seem to

doddle along used to my limitations in terms of walking, how long it takes me to

do things, and general sense of wellbeing. Then I go through a " bad patch "

whether it be sparked off by a flu or stress or something else and come out at

the other end to find that everyday chores and all the rest are just that little

bit harder to accomplish. I then doddle along used to those limitations.....

I didn't really seem to notice this until I hit my 30's and spent some time

wondering whether I was just growing up or growing old!

Fiona in Glasgow Scotland

Posted

s poll answer:

Comes on in distinct jumps with plateaus in between

(er, , I haven't put this poll together yet, lol, Ed just suggested it,

give me some time, as there will be more selections to choose from ~ Gretchen)

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