Re: helping my grandson - CMT not MD

[Guest guest]

Hi Peggy,

CMT is NOT a 'type' of Muscular Dystrophy at all. MD and CMT are

totally different. If your grandson was diagnosed through an MDA

clinic, he may need to be educated correctly about CMT.

CMT is one of about 40 neuromuscular syndromes/conditions/disorders for

which people can go to a MDA clinic (Muscular Dystrophy Clinic) to be

fitted for leg braces if needed, and consult with doctors. You can look

in our Files section for a document on the 'difference between CMT, MD

and MS (Multiple Sclerosis).

My own first experience with a MDA clinic was so horrible I ran out and

never returned. I caan certainly relate to being 'freaked out'.

Bob's suggestion about asking your grandson to join is a good

one - we won't bite (lol) and will help in all we can.

~ Gretchen

[Guest guest]

I hear that Gretchen!

I was pretty freaked out and on top of it I was afraid to ask questions to calm

my fear because I was afraid of the answers. LOL

Turns out what I had heard and was told was not always correct.