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[Guest guest]

Welcome and thanks for your introduction. I too, by nature, am

a " toe walker " (now it only happens when I am overly tired) I don't

wear leg braces, never have, when I was 21, they were suggested and I

bailed.

I am midly affected, I suppose. Am very active, work, travel, play,

workout 6 days a week, etc. Was diagnosed when I was 10, am now 54. My

adult baseline EMG/NCV showed all normal results with some

reinnervation, suggestive of Type 2.

No one in my family, as far back as I've gone (about 1750) has or had

CMT.

CMT affects us all differently, depending on our unique genetic code.

Family members are often affected differently.

There isn't a doctor or a person on this planet that can tell you 'how bad it

will get' or even 'how CMT will progress'. I once had a doc tell me I'd be

wheelchair-bound by age 30. That never happpened. It certainly is 'not bad at

all " for me, and no 'progression'. I have always had a short indentation in the

front muscle of my legs (peroneal muscle) - not a big deal as far as I have ever

been concerned.

In my teens and 20's I did have pretty bad muscle spacisty and fell often, but

this happened primarily because I was over-fatigued. I have learned to 'pace

myself' - break up activities, jobs, play, exercise, etc., to find what is the

best time for me to do certain things and then do manageable segements within

those time frames.

What helps me the most and has for years is exercise like biking,

horsebackriding, walking in sand, aerobics and more lately, aquatics

and Pilates. I also eat a very low-carb diet, with alot of good

protein, and fruit, vegetables and drink only bottled artesian water. I also

take Vitamin E 1000 IU a day. Adequate and restful sleep are also very important

to me and managing CMT.

I hope you'll look through past messages and our Files section for good CMT

information. I know you'll find hopeful and helpful.

~ Gretchen ( Founder and Moderator)