Guest guest Posted September 25, 2006 Report Posted September 25, 2006 Welcome , I have three kids with CMT. Ages 13, 14 and 17. Do you have CMT in your family? Did you take any pre term meds? Quote
Guest guest Posted September 26, 2006 Report Posted September 26, 2006 Welcome , Many of us here have children with CMT. I myself have 3 children. My oldest is 24 & he is severely affected with CMT. My youngest son is starting to show mild symptoms at 21. My daughter,23 somehow escaped the disease. The guilt I carry for passing this on to my kids is enormous,but you will find lots of understanding and support with this group. Donna from Indy. Quote
Guest guest Posted September 26, 2006 Report Posted September 26, 2006 hi shannon, yes my daughter was diagnosed with cmt when she was 5, she is 25 now, working and raising 2 children of her own. She says she doesn't feel any different from anyone else and she wants to work. She has it in her legs (she fell down a lot when she was small we just thought she was more clumsy than the rest of the kids), She does have a lot of pain in her back that she has learned to live with.She is very open to it, and has let her employers know that she has it. Sharon Quote
Guest guest Posted September 26, 2006 Report Posted September 26, 2006 Welcome ... I have a 6 year old son with CMT...no one else in our family has it, but we are learning more everyday. We'll help in any way we can. Take care Sally Quote
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