My Introduction

[Guest guest]

Hello my name is ,

I have a 13 year old son who I am confident has CMT. He has seen a neurologist

and will be having a MRI, EMG and NCV in October. The neurologist said that he

is now trying to figure out what type of CMT my son has. My ex-husband, his

father and grandmother all have CMT, but I am still in the process of trying to

find out what type they have.

My ex-husband thinks it is type 2 but is not sure. For some reason he thinks it

is no big deal and our son will just need to wear braces on his feet for awhile.

I sure this is because it barely affects him.

I have know for years that my father-in-law had CMT but I wasn't sure what it

was. About 5 months ago I saw a commercial about CMT and went to the website.

It was like a light bulb went off, I have known that something was wrong with my

son's feet since he was 4 years old. Every time I asked the pediatrician he

would say oh he is just a tip toe walker.

He could never run right and stopped playing sports by the time he was 6 because

he would get teased. It has progressed and now he is having problems with his

hands. His teachers can't read his handwriting so they are thinking about

letting him use a laptop to take notes. He also has problems doing some of the

things in gym class but he does not want to be in a special gym class. It is

pretty scary not knowing what will happen and how bad it will get. My

father-in-law is barely affected by it and showed no symptoms until he was

older. Could my son have it worse since he is only 13 and is already affected?

I would love to hear your input.