My Introduction

[Guest guest]

Hi,

My name is Jaimie, I am 29, married and living with CMT.

I was born in Norfolk, stayed in Edinburgh for a few years and moved to

Shropshire where I live right now.

My two brothers, my mum and quite a few of my relatives on my mum's side all

suffer with CMT. My mum showed no symptoms until her mid 30's. Ten years later

she is permanently in a wheelchair.

My youngest brother had no symptoms until he was 14. He only has minor symptoms

but enought to affect his everyday life.

My other brother had syptoms from birth. He was diagnosed with CMT when he was

16. Unfortunately until his diagnosis we had not heard of CMT. This led to my

brother having painful operation after painfull operation, while they tried to

find out what was wrong with him.

Me, I had problems since i turned 12. The Doctors said my symptoms were normal

growing problems. Then when i was diagnosed with CMT things all made sense. I

now have to take things easy. My hands are weak, have loss of sensation. My legs

are weak, i still trip over, fall down stairs, find stairs almost inpossible to

climb / descend, and need to use a wheelchair if the distance is more than 30 -

50 metres.

I get cramps in my legs so bad that i have strong painkillers. I also get what I

descibe as the bones aching.

But i manage. Having a wonderful husband helps. I know that things could get

worse, but for now I'm living in the NOW. Plus there is always someone else

worst than you. And I'm just thankful that i'm not that person.

Jaimie

[Guest guest]

Hi and Welcome,

I have a niece who was also affected at the age of 13. She is now 38 and

still is the same. CMT is a strange disease. Symtoms vary from person to

person. I am 63 and have had cmt since I was 30. My legs are just about gone,

my

hands keep getting worse (can't seem to hold on to anything), and no balance.

I have 3 sons, all with cmt in different stages, and a grandson at 19 with

his feet and hands affected. You just have to keep a positive attitude and keep

smiling. In this group you will get alot of information and everyone is so

nice and very helpful. If you have any questions, this is the place to ask.

Our founder, Gretchen, is so knowledgable and helpful. She is fantastic.

Kathy in Mn