Guest guest Posted October 20, 2006 Report Posted October 20, 2006 Hi Lesley I was waiting to hear the results of the genetic tests. You know, just because they couldn't identify a specific genetic marker doesn't mean it doesn't exist. I just got my results, and I have not one but two markers. The second marker is so new that they don't know its significance or its inheritance pattern. This is how new genetic tests for CMT are. Heck, I bet most of the people on this board haven't had genetic tests to confirm thier diagnosis. I was wondering if they've checked your son for things like Lyme Disease and Celiac Disease. Both of these common conditions can cause neuro problems. I feel for you. I, too, have 14 year old son with a chronic condition -- type 1 diabetesWe are luckier than you, as it does not impede his daily activities. In fact, most people don't even know he has it. Its a tough blow for a kid to deal with a chronic condition. I was symptommatic for CMT when I was 14. I stumbled alot, and I couldn't run well, but, overall, my life was pretty normal. Just remember that there's more to life than cycling, etc. It may not be what your son wants to hear, though. Best wishes Helen Quote
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