Introduction

[Guest guest]

Hello everybody.

My name is and I'm from a small town near Manchester in the North West of

England. I suspect that I may have CMT, but have not had a diagnosis yet - I

have an appointment with a Neurologist in July.

I have had very high arches all my life (I take a size 1) and always struggled

with shoes. I stumbled across CMT when a Podiatrist said I had pes cavus and I

looked it up on the internet. I realised that I had been experiencing some of

the symptons for years (cold hands and feet, painful knees and sometimes ankles,

very thin ankles and wrists), but as they weren't severe, I hadn't thought

anything about it.

Then last year, at the age of 42, I gave birth to a beautiful daughter and it

seemed that there was an acceleration. My feet became very painful when I was

walking, my right ankle ometimes 'gives in' for no reason and my left knee is

painful.

I'm still not sure if I do have CMT, but I have noticed my feet either being

very cold or very hot and sometimes it feels like

someone is stabbing the bottoms of my feet and they jerk on their

own. I also get the sensation of something crawling under my skin in

my calves, which are very thin at the front with about three small

lumps on each leg in a line. Does this sound like CMT?

I think my mother and grandmother might have had it, but both were diagnosed

with arthritis in the 1960's. My grandmother was in a wheelchair by the time she

was in her 30's, but I don't remember her as she died when I was very young. I

don't remember my mother having any symptoms apart from her clawed hands -she

died too 15 years ago.

I am concerned mainly for my daugher which is why I going to the

Neurologist. Anyway, that's my story - sorry it's so long. Any

feedback would be appreciated.