London CMT

[Guest guest]

Hi Donna,

Thanks so much for your reply. Yesterday I went to see Dr N Hart at St '

hospital in London. He was fantastic, very understanding. I have been booked in

for a sleep study in July along with several other tests (phrenic nerve/vocal

cord etc). Fingers crossed they may be able to help, life is so frustrating when

the simplest of tasks leaves me struggling for breath. Thanks for the info

regarding the other consultants I will bear them in mind if I Dr Hart is unable

to help but he did seem quite positive and he also stated that he knows many of

the doctors that have written articles on CMT.

Good luck with the gym, I wish I had the energy but I am constantly tired which

may be to do with the breathing problems.

Thanks again for your kind welcome.

Take care