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My Introduction

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Posted

Hi There!

I am a middle aged guy who has lived with CMT type 1 my whole life. My career of

23 years was aviation; in a field of aircraft with more than 2 engines. I am a

husband, father, and householder.

My CMT has given me a moderate scoliosis, a 30% decrease in lung capacity,

hammer toes, tiptoe (surgically corrected) and slapfoot gait, high arches, calf

and hamstring cramps, decreased bladder and bowl control, palsy, atrophied /

dystrophied hand and foot

tendons, limited skeletal movement, restless feet, gloved sensation loss;

constant burning and prickling pain, and epidermal emergence of nerve ganglions.

I have other afflictions which are disassociated from CMT like; hearing loss,

joint disease, and nearsightedness.

I am living a happy life. I am at peace with my afflictions. I have explored and

defined my abilities,and I have exercised my life intending to realize all I can

be, for the sake of the love of life.

I have entered this list to share in the experience of others, as they struggle

with CMT, and to contribute with knowledge, experience, and savvy drawn from my

individual engagement with this

circumstance.

Y.T. -

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