Guest guest Posted August 10, 2006 Report Posted August 10, 2006 I have CMT, diagnosed in 1995 (at age 50) but prevalent for many years prior to diagnosis. A couple of years ago I began having trouble swallowing. I was referred to a ear, nose, and throat doctor who didn't take xrays but thought that I might have scar tissue that is frequently irritated when I swallow. I now have a sore throat almost all of the time and starting a couple of days ago, when I swallow, not only is my throat tight but I experience a pain in my left shoulder (a tightness and burning sensation). I have read several notices referencing sore throats and breathing problems. One notice I read about a woman who had breathing problems was that it came on very slowly over time. Though not significant, I breathe very shallow and have a lot of fatigue. I have an appointment with a neurologist later this month and will discuss the symptom with him. And, I wanted to know if I you have any thoughts on my symptoms. The general practitioner I see doesn't seem to be knowledgeable about CMT or any of the symptoms--physical limitations, fatigue... I want to go to the neurologist with as much information as possible. In my 61 years I have found that my own research and knowledge was required when enlisting the services of medical doctors. I do understand and I want to make my next visit useful and not futile. Quote
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