Re: knowledgeable doctors

[Guest guest]

Knowledgeable about chelation, proper tests, nutrition, hormones, and

how possibly to undo the damage I've done to myself by chelating wrong

- as well as doing some other alternative stuff that also probably

damaged me. I've found that doctors either know nothing about this,

or say they understand, but they don't.

I live in Las Vegas. At this point I've already seen about a dozen

doctors and gotten nowhere except financially poorer.

May I ask what kind of medical practice you have and where you're

located?

Thanks,

Judy

[Guest guest]

Dear ,

It is surprising that most doctors don't know much, my orthotist knew

more than my doctors. The neurologist I first went to knew the most of

any of the doctors I've been to, even the orthopedic doctor that first

diagnosed me, hadn't been involved but with one other patient that had

CMT. I would like to make more doctors aware, I wonder how we can

accomplish that? Thanks for the response.

[Guest guest]

,

I would love to see more Doctors become aware of CMT!! I don't understand how we

can have a disease that is not uncommon and no one in the medical field with an

inkling of what to do for us.

I have spent the past 7 months going to Doctor after Doctor trying to figure out

which surgery would be best for me only to have the primary Ortho Doc I was

seeing tell me that I needed to figure it out for myself and have the procedure

done somewhere else.

I have missed my window of opportunity for the surgery as all my choices

included 6 weeks of zero weight bearing and my mother was willing to spend her

summer helping me (she works for the high school and has her summer off) But

will be back at her job in approx 6 weeks. It really is discouraging. I really

don't know what we can do to make the medical community sit up and take notice.

Hope