CMT Information

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While I cannot give my 'opinions' on where to join for CMT

information, you may also want to consider purchasing the

postage stamps which will directly benefit CMT research and at the

same time create more awareness. I cannot give my 'opinion' here,

because is not set up for 'opinions', but rather

upon 'experience'. So here's my experience:

In addition, you may wish to consider The Neuropathy Association and

MDA also, since these groups also have funded significant CMT

research. The Neuropathy Association spearheaded the groundbreaking

NT-3 Research.

When considering an organization to donate to, look at the following:

1) Do the staff and Directors and Board have CMT?

2) What % of the organization's annual budget does the Board of

Directors directly contribute to and at what amount?

3) Exactly what IS the current research the organization is funding

for CMT?

4) How much does the organization spend on lobbying government for

leglislation?

5) How much does the organization spend on travel for its staff and

Board of Directors?

6) What significant CMT research has the organization accomplishment?

If an organization cannot answer these questions immediately and

present background information, including financial information, do

not donate to them. Just some things to think about from a former

fundraiser. (me)

I buy the postage stamps, so do my non-CMT friends and firm I

am associated with. I also know CMT doctors that have bought these

stamps too

~ Gretchen