European Vit. C news from Dr. Paolo Vinci

[Guest guest]

Dear ers,

Below is some updated information from Dr. Paolo Vinci, CMT expert in

Rome. Thought you might be interested to hear his perspective and learn

about the new rehabilitation textbook.

~ Gretchen

" The Italian vitamin C trial started in(2006) April, the French one in

January. It's incredible that the most advanced country in the world

(USA) has given up to be the first: probably the pharmaceutical

companies are not interested because Vit C cannot be patented (this is

one of the great problems of extreme capitalism). The neurologists here

say that the first results cannot be expected before 1 year. I am

currently writing a chapter of the main Italian rehabilitation

textbook, of course about CMT. "

Paolo

[Guest guest]

I asked my neurologist about Vitamin C yesterday. He has passed my

name on to be included in an upcoming ascorbic acid CMT Type 1A study

within s Hopkins. I'm not sure I'll be accepted because I have at

least one secondary condition. So I purchased some extended release C

and started taking it yesterday. Its made me sort of...um...gassy!

lol, there, I said it! Does this stage pass?

Just thought I should confirm that the U.S. is doing something

positive about this, despite the Italian doctor's message. I hope we

see preliminary results from France soon!

[Guest guest]

If your having trouble with gas and you want to continue vitamin c stop drinking

all soda or anything with carbonation.

Re: European Vit. C news from Dr. Paolo Vinci

I asked my neurologist about Vitamin C yesterday. He has passed my

name on to be included in an upcoming ascorbic acid CMT Type 1A study

within s Hopkins. I'm not sure I'll be accepted because I have at

least one secondary condition. So I purchased some extended release C

and started taking it yesterday. Its made me sort of...um...gassy!

lol, there, I said it! Does this stage pass?

Just thought I should confirm that the U.S. is doing something

positive about this, despite the Italian doctor's message. I hope we

see preliminary results from France soon!

________________________________________________________________________

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[Guest guest]

Aww but I had results within a month

European Vit. C news from Dr. Paolo Vinci

Dear ers,

Below is some updated information from Dr. Paolo Vinci, CMT expert in

Rome. Thought you might be interested to hear his perspective and learn

about the new rehabilitation textbook.

~ Gretchen

" The Italian vitamin C trial started in(2006) April, the French one in

January. It's incredible that the most advanced country in the world

(USA) has given up to be the first: probably the pharmaceutical

companies are not interested because Vit C cannot be patented (this is

one of the great problems of extreme capitalism). The neurologists here

say that the first results cannot be expected before 1 year. I am

currently writing a chapter of the main Italian rehabilitation

textbook, of course about CMT. "

Paolo

________________________________________________________________________

Check out AOL.com today. Breaking news, video search, pictures, email and IM.

All on demand. Always Free.

[Guest guest]

Thanks for the suggestion about avoiding carbonated beverages -- I'm

trying Vitamin C again today, at home instead of at the office.(!)

I'm fine bypassing the official study -- I would hate to choke down

1000's of pills over the course of a year only to find out that I was

getting a placebo!

[Guest guest]

Hi everyone:

I wonder how well known these studies are. When we asked Gavin's

neurologist about Vit C, he said that only Vit B has been conclusively

shown to help nerve function and that only a dose of 500mg C is safe for

a child. He said he would be surprised if Vit C turned out to help.

Given the mouse study results I was surprised at his attitude. I wonder

if North American doctors are more wary of vitamin related benefits than

their European counterparts?

Cheers

Sally