progression

[Guest guest]

In a message dated 7/28/2005 11:54:06 AM Eastern Daylight Time, kathypnrs@... writes:

symptoms coming back so I upped my LDN to 25mg in the morning for a week. All old symptoms went away again.

Kathy

You took 25 mg every morning for a week? When do you take the liquid now and how much do you take?

Arlene

[Guest guest]

Hi Kathy,

What dosage of liquid are you taking?

Aletha

[low dose naltrexone] Progression

Hi ,

I have been taking LDN since Dec.17, 2003 with great results. I was starting to see old symptoms coming back so I upped my LDN to 25mg in the morning for a week. All old symptoms went away again.

Then I tried the liquid LDN and I am still taking it. It works great. My head has been tingling since I started it last week. It kind of feels like my brain is waking up.

Hope all is well,

Kathy

__________________________________________________

[Guest guest]

Can anyone help me to understand the progression with this disease? Is

later onset usually slower progression? Can a person with CMT stop

progessing or once they start they usually keep going? Are there some

types of CMT that progress faster than others?

I feel like I am going down hill so fast and I have not even really had an issue

with CMT up until the last couple years. I am just so afraid of what is

happening to my feet, I hate going to bed at night because i am going to wake up

one morning and my feet won't move at all.

Also, does anyone feel that they have some days that are better than

others? Some days my feet feel o.k and somewhat strong and other days

they feel like wet noodles. Just started back on Paxil in hope of

getting some relief for the way I feel about this. Thanks.

Pam

[Guest guest]

Hi Gretchen,

Thanks for answering so fast. That is how i feel SO WORRIED. That must have been

so scary for you as a child.

I have not been told by a neuro doc that I have CMT but my mother

and aunt were both diagnosed with it so i know that is what it is.

i have been to an ortho doc and he said there were surgical things

he could do to help me but it is still so hard.

I do not wear AFOs but my mother and aunt did. I have very weak ankles,my toes

are very weak, my big toe is dead and i cant lift it most of the time so it

makes the rest of my foot work hard to lift it up so i dont trip over it.

i have a hard time with most all shoes but sneakers. I have

numbness some days but not really any pain right now anyway. I can

deal with what i have right now but it is whats to come that i am so

scared of.

I got the book about the 7 stages and it is full of a lot of good info although

it scared me even more. Maybe it is just me, i do tend to be anxious at times in

general. I assume that not everyone goes through all those stages due to the

fact that some have this so mild?

I do not take any other meds for anything else.

Thats funny that you talked about getting enough sleep cuz that is

one thing i am so not getting enough of these days due to stress.

i am going to the ortho doc friday to see what he says now, last

time i saw him was 2 years ago. Thanks for listening.

Pam