Re: skeptical about miraculous recoveries

[Guest guest]

Helen,

I had a DNA test to confirm the disease. I also had an EMG done at

two seperate times by two different facilities. One EMG by US doctors

and one EMG by German Doctors. My father, uncle and sister all have

the disease. I am certain it is CMT. I may have had two seperate

problems going on at the same time - but either way I continue to get

better.

Matt

[Guest guest]

Matt, in that case, its very cool that you are " remitting " !! I was

just confirmed for CMT with genetic tests. I'm 41, and my kids are 11

and 14. I'll have to go back and read what your program is, because I

am certainly interested! I am at Hopkins, and they are part of a

trial for ascorbic acid. I can't participate because I have at least

one other neurological condition -- autoimmune-based which does flare

and remit. Sorry if I seemed the skeptic!

Helen

[Guest guest]

Helen,

Being a skeptic is a good thing. We need to be safe and careful.

[Guest guest]

Helen,

You should never be sorry for being a skeptic who is willing to learn - now, on

the other hand, an unwilling skeptic is truely in a sad state. I never follow

people just because they say so. I have logged in thousands of hours of

research the last 7 years with my wife.

You probably already know this, but remember that CMT is not your life - your

family is. Don't dwell on the negative occupy your thoughts on the positive;

there are so many blessings in life.

The key thing that I am taking right now is called LifePak Nano and G3 juice

from Pharmanex. If you do go back and look at my regimen you will notice that I

am only taking 2 oz of G3 - this next month I will be going to 4 oz. (two in the

morning and two in the evening).

You need to go to the following website and take the tours. It will talk about

their Biophotonic Scanner and LifePak (unfortunately, it doesn't talk about G3).

http://www.mysuperscanner.com/distributors/bfscoachshepard/tours/product/2.aspx

After watching the tours let me know what you think. You would be interested to

know that in LifePak there is included an anti-inflafation formula that is

helpfull and the key focus of the supplement is to increase antioxidants whose

function is to get rid of free radicals, which in cunjuntion with stress is

probably the culprit to the flareup of your secondary neurological problem (but

I am not a doctor).

I am fortunate to live only an hour from one of Pharmanex's three labs. I took

a tour of it this weekend. I am even more amazed at this company. They built

their lab to pharmaceudical standards (no other nutraceudical company has done

this) - meaning they

test everything, and I mean everything, so you can be sure that everything you

take is exactly what you baught. They test for heavy metals and poisons, they

test for chemical composition, they test for absorbtion, they test everything.

They have over 130 full time

scientists on staff from every field. It is nice to know that with over $22

billion being spent on supplements someone is trying to raise the standards.

If you ever get a chance to come through Salt Lake City give me a call and we

will take a tour together - they open their lab up for tours every 2nd Friday

and Saturday of the month. It is well worth it.

I want to make one more comment. Everyone, especially us with CMT, need to do a

good detox program at least once a year. The toxins in our body build up

limiting our ability to heal and causing disease. A good detox is especially

important because if you have a lot

of toxins in your body the LifePak will start drawing them out and a good detox

will help you process these toxins out of your body. I usually use stuff from a

company call HHA for detoxing (1-870-269-4177) which are very good. But I am so

impressed with

Pharmanex that I am going to try their detox formula next week and see how well

it works.

Matt

[Guest guest]

Thanks for the information, Matt! I am thinking of seeing a

naturopath in D.C. that several neighbors swear by. I'll have to

study up on this so that I am prepared to discuss alternatives such as

your routine! Helen

[Guest guest]

I had a friend that lived in Salt Lake trying to get me to buy something she

sold called " Nutrients " she claimed it healed her Lupus and cured her kids

ADHD. She talked about the toxins and detox etc.. It was $150.00 minimum a

month.

For that price I will keep my toxins.

BTW her lupus flared back up and her kids are still hyper. LOL

[Guest guest]

> I had a friend that lived in Salt Lake trying to get me to buy something she

> sold called " Nutrients " she claimed it healed her Lupus and cured her kids

> ADHD. She talked about the toxins and detox etc.. It was $150.00 minimum a

> month.

> For that price I will keep my toxins.

> BTW her lupus flared back up and her kids are still hyper. LOL

>

>

>

> ,

Thank you for bringing this up. This is the point I have been trying to get

across. I am

not talking about a cure-all miracle drug. I do not know what your friend was

selling or

whether or not it was a good product, but there is a lot more to living healthy

than just

taking some supplements. Most likely she was taking these " nutrients " and

putting her

faith solely in them without changing the rest of her life and creating a truly

healthy

lifestyle. I mean, we can't put good things into our bodies and expect to do

well if we

continue to put damaging things in as well. Granted, a part of the problem is

that we just

don't know what is damaging (unless we put forth the effort to know) – but these

" toxins "

don't care whether or not we know it is damaging. If we want to continue eating

excessive

amounts of sugar or take in chemical drugs like aspartame and MSG or daily

consume

pesticides, hormones and preservatives we shouldn't expect to be healthy.

I am talking about creating an environment in our bodies that will allow our

bodies to heal

themselves. Fact: Free radicals cause disease. Fact: antioxidants get rid of

free radicals.

But ridding your body of free radicals is only part of the equation.

Stress and drama in our lives takes its toll on our health as well. Do we

create drama in

our lives or do we truly enjoy life? Most stress can be handled well. What

kind of music

do we listen to - is it uplifting? What kind of conversation do we create - is

it thoughtful?

Do we carry thoughts of gratitude? Do we laugh and enjoy our blessings? OR . .

.. do we

dwell on our disease, do we always think and talk about the negative (these

people often

consider themselves " realists " ), do we sit down and watch hours a week of TV and

fill

ourselves with this made-up drama and then turn on the radio to hear " music " of

anger,

depression or rage? Do we keep our homes neat and clean. But this is only

another part

of the equation.

We also need to put things in our body that will help specifically with nerves

like

Glutathione, Alpha-Lipoic Acid, N-AcetylCysteine, Folic Acid, Vitamin B12,

L-Glutamine,

Inositol, small amounts of Vitamin B6, lots of Vitamin C, etc. But this is only

another part

of the equation.

What are our eating habits? Do we eat fruits and vegetables? Do we drink

primarily water

- and lots of it? Do we carefully pick out what we eat? Have you ever tried to

figure out

why you get so defensive about your Diet Pepsi when someone tries to tell you

that it is

really bad? Emotions like that should bring up red flags. Do we know what our

food

allergies are and stay away from them? But that is only part of it.

Do we exercise? Water Aerobics are great. I like to put my 2 year old in our

backpack or

in the stroller and walk a few miles everyday.

Your friend was probably like most people and tried the quick way out without

doing the

full equation. Unfortunately most people are unwilling to do what it takes to

live healthy -

there is no quick fix. Just do part of the equation and watch it fail - you

will have your

self-fulfilled prophecy.

I am not saying what I am doing will miraculously heal everyone. I have done my

homework and have had the discipline and I am continuing to get better - that is

my

claim. I do not know if my nerves are regenerating as they should or not -

hopefully I will

have an EMG in September to find out - but I do know that I can run, jump,

swing, wrestle,

climb and dance with my daughter now - she has no idea that I have a disease,

she only

knows I am the best dad in the world.

Matt from Columbus, GA; Tarlac, Philippines; Sweinfurt, Germany and currently

Salt Lake

City, UT