Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 Donna said " I am so embarrassed by this disease, that I would never even consider going swimming (have to be barefoot) boating, walking on the beach..etc. So if anyone has any tips on how to get beyond the embarrassment of having severely deformed feet and being able to tell someone that, I would love to know. I am so afraid of someone just saying " yuck " and walking away, therefore further knocking down my self esteem, that I would just assume try and keep it a secret from a man. " Donna, I don't have CMT, my husband does, and I go to water aerobics 4 to 6 times a week. I hate to let you in on a little secret, but I am not bothering to look at your feet and say yuck because I am so worried about what everyone is going to think about my big, fat beer barrel stomach. Seriously there isn't anyone at water aerobics who doesn't have some yuck factor, but none of us is that important that anyone really gives a damn. I have made many friends in this activity and improved my conditioning. As to AFOs my husband's first set made by the orthotist recommended by UCLA never fit right. He took them back to be adjusted countless times. They were molded plastic. His latest set made by the orthotist recommended by Santa Barbara MDA doctor are the old-fashioned metal kind. I think they are more comfortable because they touch in fewer places. Don't accept ones that don't fit right as you will never wear them. Get them early as postponing makes you more deformed and harder to fit. Elinor Quote Link to comment Share on other sites More sharing options...
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