Re: Self-Esteem - Reema's thoughts

[Guest guest]

Hi Reema,

I found what you said about you not seeing your CMT but other people seeing

it very interesting.

As mine manifests in very subtle ways right now, as in my gait is only

mildly impacted and only when I am over tired or when I have done too much

exercise, most people do not see my CMT. I think therefore that people

assume I am 100% like them. I used to think so too, until just recently

when so much air travel really started to take its toll and I started to

feel just super fatigued (oddly the train travel does not have the same

impact on my well being).

That is my challenge. How to show others that I am having some constraints

without have them think I am so to speak " the lamb crying wolf " and seeking

undue allowances when I appear fine. One thing in particular strikes me,

and that was getting a note from my neurologist to ban any long haul economy

class flights related to work. This I think would be interpreted as seeking

favouritism (you need special dispensations to get for example a first class

flight when business is totally booked).

How I manage my health and CMT is one of the things I am thinking about this

week, giving special attention to, when I am off of work. That and finally

unpacking in my new house!

All the best from London, and PS - I loved your father's quote too,

Donna