Guest guest Posted August 12, 2006 Report Posted August 12, 2006 Matt, Perhaps the MDA clinic near you would be a good way to go on this. Go to http://mdausa.org then type in your zip code to find the closest one. I too started supplements (Vitamin E) 10 years ago. That is also when I began drinking Artesian Fijiwater (http://fijiwater.com) which is loaded with Magnesium, Calcium and Silica. I also completely changed my diet/nutrition program and about 6 years ago started exercising in an intense aquatics program. Just this year I added a Vitamin B complex. All of this has been very positive for me. I just had my 54th birthday and feel better NOW, way better than I did at 34. My last EMG/NCV test revealed ALL normal results, with some reinnervation having taking place. (That is the nerves rewiring themselves on their own) Whether or not my supplements, water, diet changes, and exercise allowed this to happen, I don't know. I've still got CMT, but to tell the truth, I am far less affected by it than I was at 34. Perhaps too I am in a better place emotionally, psychologically and spiritually, and all that may have played an important factor. ~ Gretchen Quote
Guest guest Posted August 16, 2006 Report Posted August 16, 2006 Gretchen, Thank you. The website was very helpful. It led me to the MDA Clinic at the University of Utah. They have a doctor dedicated to CMT. She is out of town until September but she is excited to see me and to investigate what I have been doing and why it has helped so much. It is great to see that she is so eager to have me come in and that she is so dedicated. Also, thank you for sharing your story. As with you, I feel it is a combination of diet change, the right supplements and a mental/spiritual change. Last night I realized, that I haven't dropped my keys in over two months. It is funny how little things like that seem so wonderful. If I can keep my schedule clear, I am planning on doing a 12.4 mile hike with a 4652 foot elevation change on September 9th. It is a hike I have had a goal of doing for almost 2 years now but didn't think I could do it until now. Also, as a side note, I never realized there was a photo section to the site until yesterday. I posted some picture of me and my family (wife and two daughters). It is titled Matt from Utah. That is a neat feature of the site. Matt Quote
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