Guest guest Posted July 13, 2006 Report Posted July 13, 2006 Hi Everyone, My name is Briget and I am 54. I have been recently diagnosed with CMT by the Department of Neurology in Pittsburgh. Although I feel the diagnosis is correct I have yet to find a Doctor that really knows anything about CMT. I was put on many drugs which none helped. I had the genetic Athena diagnostic test that cost $4,000. and didn't even find out which kind of CMT I have. I am totally frustrated with the neurology department and have been trying alternative medicine which I have been getting much better results from. I was first thought to have MS, I thought I had Lyme disease. I have extreme fatigue and was having horrible leg cramps until i started taking supplements. It's nice to have found another place to share our strength , hope and pain. Peace, Briget Quote
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