Re: welcome Bridget/diagnosis/supplements

[Guest guest]

Briget:

Glad to hear from you.

You are not alone in frustration with neurologists in general. They

are the techno-geeks of medicine. I went through the same diagnosis

trip that you did, but I had ALS thrown into the mix. My sister has MS

so I had a ten year view into what living with MS might offer, a walk

in the park when looking at ALS. He even asked if AIDS might be in my

past. The local neurologist finally referred me to a specialist who

took all of 5 minutes to say I have classic symptoms and leg

architecture of CMT. My thought was if the presenting symptoms were so

classic, why didn't the local Bozo see them?

The best care I have received came through the local Muscular

Dystrophy Association clinics. As much as I hate " La Grande Jerry " ,

the MDA here has given me great support. In Western Virginia, there is

a cluster of CMT patients and the local MDA has a real interest in

serving them. Call your local MDA and see what they have to offer.

As to leg cramps, 500 milligrams/day of Magnesium has solved my

cramps. I hope your supplements include magnesium.

-- Larry