Can we stop / slow down progression of CMT at the age of 5?

[Guest guest]

Hi,

My name is Mrs.Leena Hemant Devasthali. I am 36 years old residing in Mumbai,

India. I'm suffering from CMT for last 31 years. My father, who is 67 years old,

is also a CMT patient.

Recently, we have observed muscle weakness and slight footdrop in lower limbs of

our 5 year-old son, Harsh. So we consulted one reputed neurologist. He also

conducted " Nerve Conduction Test " . Its report shows Motor Neuropathy and axonal

+ demylinating in the lower limbs.

We searched for information regarding CMT on the internet and thus became member

of " " group. According to our information first remedy to control the

footdrop is bracing (AFO). For maintaining muscle activity swimming may be

helpful. Please let us know your opinions on our understandings.

In addition, we have few more queries. We will be very grateful if you can

provide us necessary information/guidance on the same.

1.Can we stop/slow down the changes and deformities due to CMT? Which necessary

actions should we take immediately?

2.Can we stop the progression of CMT? Is there any medication available which we

should start immediately for this purpose?

3.As our son is very active child, can he do activities like cycling, climbing,

running? Will these activities create adverse effects on his limbs?

4.In his growing age, what diet modifications should be done to help his muscle

activities?

5.What type of exercises should be done daily to avoid further deterioration of

the muscles? His hands are not affected yet but weakness is observed only in

the fingers of his lower limbs. He is unable to walk on his heels.

6.What is " Strength Training " which is given to slow down nerve deterioration &

muscle weakness process?

Kindly guide us on above mentioned queries.

Thanking you in advance.

Regards,

- Leena Devasthali (07/06/2006)