Guest guest Posted July 27, 2006 Report Posted July 27, 2006 Gretchen: I just finished reading " Part 2 -about SSDI, CMT and You. Unfortunately, I didn't get my doctors agreement to support my disability claim a year and a half ago. At that time my doctor told his assistant to tell me to go ahead and file. Now a year later and two rejections by SSDI, he is unwilling to write a letter to confirm that I complained to him about chronic fatigue before my ineligible date of 3/31/05 and in fact wrote in my medical records on 4/13/06 that I appeared to be functioning fine and couldn't support a claim for disability. He has never seen my legs, doesn't acknowledge the chronic fatigue that I have and had provided no additional guidance to manage the disease that I just found doing my own research. Through my own research I also discovered that I had 16 of the 18 points of soreness and tenderness inherent in Fibromyalgia. Only after guiding him through the articles did he refer me on to a rheumatologist. My questions is how do I find a neurologist in Portland area that is knowledgeable enough about the disease to truly assess my ability/inability to work. The above is an instant message that I wrote. In response to your advice yes my reconsideration requests were filed within the 60 day time limit. I am working with an agency called Allsup. Based on the above information however, I may be contacting a lawyer that one of the members recommended. I am also going to seek an appointment with a neurologist who specializes in CMT if I can find one in the Portland to Seattle area. Thank you for your responses and for welcoming me. Quote
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