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numbness

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Posted

Hi Gretchen,

I was wondering if you know if it is possible for a person with CMT to have

numbness without the weakness, like say numb toes but they still work with no

foot drop. And can you have the weakness without the numbness? Or does one

always lead to the other?

Thanks

Pam

  • 1 year later...
Posted

Hi ,

Just my thoughts here - my feet are the only part of me that can get

numb. You are right, we know our bodies well. If you feel that you

have an inflammation, why not consult with another doc for a 2nd

opinion - since you wrote this current doc thinks you're nuts (and

WE know you're not. (and who knows, you just may have an

inflammation that has been missed)

As for the left side issues in your body, could it be there is more

muscle on the left than on the right? Are you feeling muscle tissue

or fat? Are you on any medications that have a side effect of fluid

retention, or are you eating too much salted foods? Have you started taking any

new supplements? Are you exercising differently or have you just started an

exercise program? Within the last 3-4 months have you had the flu or a cold or

been exposed to someone with a cold or the flu? Think back to when you felt the

numbness started to get worse and see if there is anything in your life that

might have triggered it - perhaps a stressful event.

Since your numbness is getting worse and causing some pain, I would

suggest another doc's opinion. At least that's what I would do. Any doc who

thinks I'm nuts shows disrespect and never gets the 'opportunity' to see me

again.

Gretchen

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