New information on my diagnosis

[Guest guest]

On June 15th I had an appt. at the MDA Clinic in New Jersey at St.

Francis Neuromuscular MDA Clinic. I saw Dr. Albert Tamoush the

Neurologist.

I have had a non-healing fracture for one year and have been seeing many

specialists in the Phila. area. I had my films with

me (x-ray, MRI, Cat Scans ) and I had numerous reports faxed to him

EMG Tests etc... I did not say anything, I wanted him to look at the

data and come to his own diagnosis.

It seems as if when I started to talk about family problems the focus on me and

my diagnosis became fuzzy. After reviewing volumes of data and examining me he

concludes that what I have is Hereditary Sensory Neuropathy I which is I believe

a variation of Charcot Marie Tooth.

I was able to talk to him, he was very knowledgable and was going to send info

to all my Drs. that I am being followed by.

I see my Rheumatologist on Monday and I have been on Fosamax but I think he may

recommend additional bone building medication because I have Osteopenia. I

started seeing a holistic healer every two weeks (I met her at Staples) and we

are working on diet.

For two weeks I focused on adding greens and for the next two

weeks I am focusing on adding whole grains. I went back to the

Chiropractor I used to see and I see her once a week. I swim every

day. Does anyone else have what I have?

Diane