Re: Matt's routine

[Guest guest]

Hi Matt,

It is wonderful that you have had such great results with your routine. Do you

mind going into detail?

Thanks,

[Guest guest]

Matt, it's great you're better. What exactly have you done for the past six

months? (Sorry if I missed a posting.) Maybe some of the steps you've taken

could help other folks too.

Daria

[Guest guest]

Hi Matt,

Could you please share with the goup exactly what supplements you are taking and

the dosage that you are taking that you think made a difference in your CMT.

How long were you on these supplements before you started noticing a difference?

Thanks.

Betty

[Guest guest]

Matt,

You wrote, " What I have been doing for the last 6 months has changed my

life. " I'm curious as to what you've been doing?

[Guest guest]

Matt,

Please do share what you are using, I am sure we would all love to know. I take

a lot of supplements but have not had THAT kind of result. I think they help but

it sounds like you have really found something great.

Pam

[Guest guest]

Matt's Routine

I am very excited to share my supplement routine. I got everything set up to

share with family members who have the disease thinking they would be excited

themselves to do what I have done but, although excited for my success, they did

not want to follow. So I am thrilled to share with you. It might get a little

lengthy-I talk a lot. As a disclaimer, I am not a doctor – just someone who has

done a lot of research and has found success in fighting disease in myself. The

most notable thing I found out is that most supplements

do not work. If your body cannot absorb them then they are useless (no matter

how much you have spent on them).

There are two companies I found that have superior products you can trust. They

are Herbal Healer Academy and Pharmanex. However, in addition to taking

supplements, you also need to do a good detoxification if you have any of the

following three problems:

DETOX

There are three major things that really hurt us as members of the illustrious

CMT club that require a detox. #1 Yeast infections (also known as candida) -

you get this, unknowingly, if you have had to take heavy antibiotics. Yeast is

really bad not only because of how sick it makes you but it keeps your

intestines from absorbing the nutrients you need to heal.

#2 MSG poisoning – you get this if you eat packaged foods containing

MSG. A lot of Asian food contains MSG as well so be careful. The drug MSG is

an excitotoxin that goes directly to brain and tricks you into thinking your

food tastes better and makes you want more of it. It causes a host of

neurological disorder symptoms as well as many other side effects. STAY AWAY

from MSG! For more info go to

www.msgmyth.com.

#3 Aspertame poisoning. Yes, your diet soda is hurting you and

making your neuropathy worse. STAY AWAY FROM DIET SODA! The artificial sweetner

Aspertame is comprised of a dangerous excitotoxin and 2 neurotoxins. Extremely

dangerous for everybody but especially us. It literally attacks the nervous

system. One of the 92 side effects of this drug is death. The Desert Storm

Syndrome was caused by Aspertame. It is not a safe drug by any stretch of the

imagination. Go to www.dorway.com for more information.

Our nerves are under enough stress, we do not need to add to it with the things

we eat. The toxins from these three things do not leave

our bodies on their own. But you can detox from them.

You will want to use Herbal Healer Academy (HHA) products for your detox. A

candida detox is pretty detailed so you will want to talk to them about it.

They also have an MSG Detox formula that is $17 – dose is 10 drops under tongue

2x a day until bottle is gone.

Their Aspertame Detox Formula is also $17 – dose is 10 drops under tongue or in

a little water 2 to 3 times per day until bottle is gone (dose should be less

for children). Call HHA for help with detoxification questions or to order at

1-870-269-4177. Before ordering you do need to become a member and to register

you need to go to www.herbalhealer.com.

SUPPLEMENTS

The following is what I have been taking with amazing results:

I started on a product from HHA called Ultra NeuroRecovery from American

Biologics about 12 months ago along with liquid calcium and 3,000 mg of Ester-C.

I immediately started feeling better. However, about 6 months ago a switched my

regimen to the following:

At Breakfast:

* 2 capsules of NeuroRecovery (from HHA, $28 for a months worth)

* 1 Packet of antioxidant Vitamin called LifePak Nano (from Pharmanex, $100 for

a months worth)

* 1 capsule of L-Carnitine (from HHA, 60 capsules are $29.95 – it is an amino

acid that prevents fatty build up and enhances effectiveness of antioxidants

Vitamin C and E.)

* 2 oz. of G3 juice ($59 from Phamanex for a months worth – I only take it in

the morning but wish I had the money to also take it in the evening. This is

packed with highly absorbable vitamin C and many more antioxidants)

At Lunch:

* 1,000 mg of Ester-C

At Dinner:

* 1 capsule of NeuroRecover

* 1 packet of LifePak Nano

(I would like to add another 2 oz. of G3 juice from Pharmanex and HHA's coral

calcium when my budget increases - calcium plays a vital role in the

reproduction of DNA and for optimum health)

At Bedtime:

* 4 ounces of raw Apple Cider Vinegar mixed in 12 oz of water, honey may be

added if desired (it is a rich source of amino acids and a gentle detoxification

agent, curbs the appetite plus much more. I use Braggs brand and it can be

purchased at any of your health food stores – make sure it is Raw and

Unfiltered)

TO ORDER

For HHA products you need to become an HHA member and can register for free at

www.herbalhealer.com and can order on that website (but it is a little hard to

navigate) or can call them at 1-870-269-4177.

For Pharmanex orders: In order to help my family members I became a distributor

and you can order from me. Ideally, I think you should become a distributor

yourself so you can better facilitate your own family as well – it is really

easy to do. You can order online at

www.bfscoachshepard.mypharmanex.com. You will need to register as either a new

customer or a distributor (Selecting distributor just allows you more access to

support and over your account – if you do it right you can make money as a

distributor, but if your like

me, I just did it to make it easier to help my family and friends and the

distributor help line is unbelievably helpful. You can then order and if you

order online you will need to select ADR (which means automatic delivery) in

order to get a discount or you can call me directly and I can help you order

over the phone through 3-way conference calling or to get set up as a

distributor for your family and friends– I talked with my boss (who is awesome)

and he said I can take the time I need to help my CMT friends so please call so

we can talk. My work number is 1-800-628-9737 or you can email me at

matthew.shepard@.... I have a cell phone that you can call me on after

4:30 Mountain Time if you would like and that is 801-440-4969 but please do not

call after 8 PM (I need to do the bedtime ritual with my daughters) or on

Sundays. To learn more about Pharmanex products go to

www.mysuperscanner.com/bfscoachshepard.

Please feel free to call or email me. Like you, I am sure, I love to help – do

not feel like you are bothering me. My wife is used to me always helping people

so she won't mind either. Even if you would like to just know more about the

products I am taking, how they work

and what is in them.

Matt

[Guest guest]

Matt,

Thanks for sharing. Thats great that you have had such a turn

around in your symptoms. I looked into some of the stuff you are

taking and it looks like there is a lot of vitamin B6 which is

something CMTers are not supposed to take and I try to stay away

from it. Maybe I am wrong, maybe it's just mega dosing of it that is

bad but Vit B6 just scares me. Best of luck to you though, keep us

posted. Great kids, I have 2 girls too and they are so much fun,

they just talk too much sometimes lol.

Pam

[Guest guest]

Gretchen, did Matt write what his routine was as far as what

supplements/exercise etc. he was doing/taking? Somone wrote thanking him and

talking about B-6 being harmful for CMT people but I can't find the original

post from Matt that she got her information from. Could you by chance repost

Matt's original post because it never came though to me. Thanks.

Betty

[Guest guest]

In a message dated 8/16/2006 7:32:06 P.M. Pacific Daylight Time,

p_ortwein@... writes:

<maybe it's just mega dosing of it that is bad but Vit B6 just scares me.>

Pam,

Mega-doses is how I understood it.

_Medical Alert_ (http://www.charcot-marie-tooth.org/med_alert.php)

Good thing I just looked at the list again. Adam takes Prevacid.

[Guest guest]

Hi Betty,

Matt's response is post # 38752. You can go back in the archives a few

days to find it.

~ Gretchen

[Guest guest]

Pam,

Thank you for your input. I am a firm believer that everyone should study

things out, ponder and pray before doing anything in life – to include your

supplementation. This is what I did before adding any of these supplements and

I feel Vitamin B6 is very important for me. No one should take anyone's advice

about anything without doing these three things first – Study, ponder and pray.

Visit the following for more information on B6:

http://www.mayoclinic.com/health/vitamin-b6/NS_patient-b6

I took the following excerpt from the Mayo Clinic website:

" Vitamin B6 (pyridoxine) is required for the synthesis of the neurotransmitters

serotonin and norepinephrine, and for myelin formation. "

So, according to the Mayo Clinic, Vitamin B6 is required for myelin formation.

I feel that as part of a B complex supplementation and in conjunction with other

proper supplements, healthy eating and a good lifestyle, B6 is very important.

Vitamin B6 on its own, I agree, is

not a good idea; but as part of on overall plan, it is required. With that

being said, the following excerpt also came from the Mayo Clinic:

" Long-term treatment of two months or longer with 50-2000mg per day can cause

peripheral sensory neuropathy that is usually reversible or neuropathy

syndromes. Doses exceeding 1000mg per day or total doses of 1000 grams or more

pose the most risk, although neuropathy can occur with lower daily or total

doses as well. The syndrome is

usually reversible with discontinuation of pyridoxine at the first appearance of

neurologic symptoms. Residual symptoms have been reported in patients taking

more than 2 grams per day for extended periods. Daily doses of 100mg or less are

unlikely to cause problems. "

So if anyone does take B6 and feels worse, then stop taking it. Fortunately for

me, I feel

much better.

My supplementation does include Vitamin B6 in the following doses:

* Ultra NeuroRecovery from American Biologics: 50mg

* LifePak Nano from Pharmanex: 5mg

* G3 juice from Pharmanex: none

* Apple Cider Vinegar from Bragg: none

* L-Carnitine from TwinLab: none

Total B6 from supplements: 55mg

I hope this perspective has been helpful. Study, Ponder and Pray.

Matt

[Guest guest]

Matt,

Out of all that you take, what do you think is helping you the most?

Pam

[Guest guest]

Pam,

That is a hard question to answer. I started with mega doses (3000mg) of

Vitamin C which gave me a lot more energy plus a regular multi-vitamin

(Centrum). A few months afterward I added the NeuroRecovery plus L-Carnatine

and after a few months of that I

noticed my calfs were getting bigger. But I still didn't feel great. A freind

of mine who was using LifePak with G3 for his son who has cistic fibrosis (sp?)

recommended it to me (allthough his son still has the disease his test results

for the symptoms now come back

normal). I feel that was the missing link for my health. After starting on the

LifePak and G3 my mind is clear, my water retention is gone, my enegry level is

awesome. When I started the LifePak and G3 I dropped my Vitamin C down to 1000

mg.

However, here is my order of merrit - the top one being the one I feel most

important:

1- LifePak Nano

2- NeuroRecovery

3- G3 Juice

4- L-Carnatine

5- Vitamin C

I have Information on NeuroRecovery (all the ingredients and an explination of

why those ingredients were used) and info on LifePak and G3 Juice that I can

email to you if (or anyone else) would like. Just email me and I will reply to

you with all of the information. They are all in PDF format. Also feel free to

call me if you

would like 1-800-628-9737.

Matt

[Guest guest]

Matt, please send me the PDFs.

Thanks,

Daria

dariad@...

Re: Matt's routine

Pam,

That is a hard question to answer. I started with mega doses (3000mg) of

Vitamin C which gave me a lot more energy plus a regular multi-vitamin

(Centrum). A few months afterward I added the NeuroRecovery plus L-Carnatine and

after a few months of that I

noticed my calfs were getting bigger. But I still didn't feel great. A freind

of mine who was using LifePak with G3 for his son who has cistic fibrosis (sp?)

recommended it to me (allthough his son still has the disease his test results

for the symptoms now come back

normal). I feel that was the missing link for my health. After starting on the

LifePak and G3 my mind is clear, my water retention is gone, my enegry level is

awesome. When I started the LifePak and G3 I dropped my Vitamin C down to 1000

mg.

However, here is my order of merrit - the top one being the one I feel most

important:

1- LifePak Nano

2- NeuroRecovery

3- G3 Juice

4- L-Carnatine

5- Vitamin C

I have Information on NeuroRecovery (all the ingredients and an explination of

why those ingredients were used) and info on LifePak and G3 Juice that I can

email to you if (or anyone else) would like. Just email me and I will reply to

you with all of the information. They are all in PDF format. Also feel free to

call me if you

would like 1-800-628-9737.

Matt

[Guest guest]

>

> Pam,

>

> That is a hard question to answer. I started with mega doses

(3000mg) of Vitamin C which gave me a lot more energy plus a regular

multi-vitamin (Centrum). A few months afterward I added the

NeuroRecovery plus L-Carnatine and after a few months of that I

> noticed my calfs were getting bigger. But I still didn't feel

great. A freind of mine who was using LifePak with G3 for his son

who has cistic fibrosis (sp?) recommended it to me (allthough his

son still has the disease his test results for the symptoms now come

back

> normal). I feel that was the missing link for my health. After

starting on the LifePak and G3 my mind is clear, my water retention

is gone, my enegry level is awesome. When I started the LifePak and

G3 I dropped my Vitamin C down to 1000 mg.

>

> However, here is my order of merrit - the top one being the one I

feel most important:

>

> 1- LifePak Nano

> 2- NeuroRecovery

> 3- G3 Juice

> 4- L-Carnatine

> 5- Vitamin C

>

> I have Information on NeuroRecovery (all the ingredients and an

explination of why those ingredients were used) and info on LifePak

and G3 Juice that I can email to you if (or anyone else) would

like. Just email me and I will reply to you with all of the

information. They are all in PDF format. Also feel free to call me

if you

> would like 1-800-628-9737.

>

> Matt

>

Thanks Matt