Breathing Problems

[Guest guest]

Hi ,

No, I'm sorry I don't know the specifics of the help given to the teens

breathing problems. One teen and family was completely unaware that

breathing problems were part of CMT, however.

I'm sure a Pulmunologist and Respiratory Therapist can give you the

info you need.

~ Gretchen

[Guest guest]

Hi Gretchen,

Thankyou so much for the info, I have contacted at CMT UK in the past but

she believes that breathing problems are very rare with CMT which is one of the

reasons why I have found your site so much more helpful. After so many years of

struggling to breathe and constantly telling doctors that the asthma pumps were

not helping I feel that I am finally getting some answers. I felt a sense of

relief when I was diagnosed with CMT, at last the doctors began to believe me!

Thankyou so much for all your help, you do a wonderful job. I just wish I had

your self esteem. I am naturally shy and am so embarrased about my noisy

breathing even when I am just sitting down. I also have size 3 club feet with a

very high arch and clawed toes and my left ankle is very weak, causing my foot

to roll outwards.

Take care