Introduction of New Member

[Guest guest]

Hi,

My name is . I'm a 27 year old female living in Michigan. I was diagnosed

with CMT at age 6. Since my diagnosis my doctors haven't been able to tell me

what type I have. I have had genetic testing done and so far they have come back

negative. The specialist hear in Michigan I've seen thing I might have either

type 2B or 2D.

The unique thing about my situation is that I'm the only one in my

family to have the disorder. My Dr. thinks that I might either be

the first one in my family to have the disorder (it has to start

with someone)or perhaps I have a new mutation. I don't really don't

have any pain.

I where AFOs on both feet and have not had any decrease in muscle weakness since

age 10. I do notice I am tripping more over my left foot and think it might be

the type of AFO I'm wearing. Did anyone have there symptoms start in their hands

and move to their legs? Is there anything I can do about having icy legs all

winter? I've tried the warmest socks and it doesn't work. Does anyone else have

purple legs due to poor circulation?