Re: Rehab, training at the gym, and CMT

[Guest guest]

Hello Donna in rainy London!

I am Tammy from rainy Northeast Ohio, USA. I am new to this group and read your

post with great interest. Could you share with me the program you are using for

CMT workout. I have CMT 1A and two of our 4 daughters age 7 and 15 also have it.

Their physical therapist that they see bi-weekly has asked if I hear of any

programs to let her know. I would appreciate any info you might share.

Thank You

Tammy

[Guest guest]

Hi London Donna,

Wow, great news on your new gym workouts. What an upper! I am curious

as to why only Aqua once a week?

As for me, and seeing muscle being built up, I continue with

Aquatics, but have increased it to 6 days a week and am doing

additional new exercises in the pool, never swimming (lol, too easy

for me, same thing for walking backwards in water, too easy, lol, I'm

a 'toe walker' by nature,) so now I have the current on one mile

higher to 4 mph to give more resistance. Wow, what can I say but -

talk about feeling good!

In addition, I am seeing muscle appear now just to the side of where

my peroneal muscle is in both legs. While I don't have atrophy in my

legs to a great extent, per se, there has always been an indentation

where the peroneal muscle should be.

Am also doing more abdominal work, to strengthen " core " muscles -

that I do in the gym and also at home. That too has had some good

effects on balance, and all of this has had a great benefit on my

stamina. Seems like the more I do, the more I CAN do!

Odd for me, but I'm going for it. It's odd since as a CMT kid in

junior high, I loathed sports and exercise of anykind because it made

me extremely tired. So, here I am 53, doing all this workout stuff

now, and I can't wait to get to the gym each day! It is such a

positive place!

I will be very interested to hear the results of your new gym time.

~ Gretchen in rainy Southern California