Guest guest Posted June 1, 2006 Report Posted June 1, 2006 Hi , I just posted prior to reading this note you posted. I posted wondering about why CMT wouldn't show up on the gene testing, as it hasn't for my husband and they are assuming he has 1A, but don't know. Noone in his family has it either. We were wondering if his parents or siblings should get tested to see if it shows up on them, but it is so expensive to do that. Have you done that or considered it? Where did you go in Michigan? My husband and I are in Colorado but wondering if it is better to fly somewhere and see a specialist. The M.D. we saw initially here had read about CMT but never seen it outside of a text book!! Welcome! Quote
Guest guest Posted June 1, 2006 Report Posted June 1, 2006 , I joined group but my messages keep going to junk mail. I am trying to straighten it out. I just got my results from my blood work for CMT and was told it was negative. I am going to e-mail my Neurologist later and ask him what this means and where do I go from here. I have had several family members with problems and I am still out on disability because of problems with charcot foot. My alternate e-mail is dianedi55@... Diane D. Quote
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