Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Hi Everybody, I get the magazine " Remedy " and in it I found a very interesting article on microsurgery to transplant nerves to replace damaged ones. This is for peripheral nerves. Dr. Elkwood, M.D., chief of plastic and reconstructive microsurgery of Monmouth Medical Center, Long Branch, NJ is doing this procedure. Sounds as though it could be promising, particularly for those newly diagnosed with damaged nerves. It does state that there are things that can be done for people who have had nerve damage for 20 years. Perhaps we should try to contact him about this procedure with CMT patients because our condition is slowly progressive. P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2009 Report Share Posted November 28, 2009 I don't know the answer to that question, but I was wondering what symptoms you have seen go away since doing chelation? On Nov 28, 2009, at 11:49 AM, pallygoo wrote: > Hello everyone, > > We've done chelation with dmsa and ala for a few years now, and I > feel fairly certain that most of the mercury has been removed from > my daughter's body. Now my question is, how can we facillitate > regeneration of the nerves that were damaged by the mercury? > > Thanks, > Patty > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 Well, she still is significantly lower cognitively than when she lost her skills, but she has improved, can talk some, make eye contact, take care of her general needs. But BEFORE her vaccine injury she could read, play, etc at an above average level. She also still has the hallucinations/delusions that came with the injury but they are much more manageable. The clozaril made a big difference in her level of aggression, keeping her out of the institution and safely home with us. She is happier, on a more even keel. My feel is that the mercury damaged her nuerons, and now that we have removed a portion (hopefully most) of it, it's time to start healing those damaged neurons. She takes a prescription vitamin (8 a day, actually); EFAs, borage, sometimes yeast cleanse, sometimes rutin (for the bruising). Any input you have would be appreciated! Thanks - Patty > > > > Hello everyone, > > > > We've done chelation with dmsa and ala for a few years now, and I feel fairly certain that most of the mercury has been removed from my daughter's body. Now my question is, how can we facillitate regeneration of the nerves that were damaged by the mercury? > > > > Thanks, > > Patty > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 Sorry it took so long to reply. I haven't been visiting the group as much during the last year. All of her symptoms are better but none are totally gone. She can talk, mood swings less severe, better eye contact and sociablity, better understanding of language, better ability to learn. Less intense hallucinations. Less aggression (more from clozaril than chelation). On far fewer meds, so therefore more present in the moment (instead of zombie-like). All good progress...but the girl I had 7 years ago shall not return, I'm afraid. Too much damage. The good news is, I really love the girl I have now, even if she's not who she was before! She is a tremedous challenge and a tremendous joy. We are all doing much better and managing life well. > > > Hello everyone, > > > > We've done chelation with dmsa and ala for a few years now, and I > > feel fairly certain that most of the mercury has been removed from > > my daughter's body. Now my question is, how can we facillitate > > regeneration of the nerves that were damaged by the mercury? > > > > Thanks, > > Patty > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2009 Report Share Posted December 16, 2009 Patty - I have posted this before but we have our daughter participating in Help with Learning. http://www.help-with-learning.com/ They are part of a bigger organization called ICAN. They have neurodevelopmentalists throughout the US. See links from this page. I believe Maureen Block - Ryder Foundation also used them for her son. The neurodevelopmentalist evaluates your child and prescribes a program of 1-2 min exercises you do at home. Sound Therapy may be involved. They believe the brain is plastic and can make pathways to improve function where there was either weakness or none before. We have been doing this program for almost a year now. We have seen improvement with our daughter (who was ADHD and now ADD - we are getting there). You must be organized to do this program....because you are doing it yourself instead of taking them to a clinic thus the expense if far less than taking them to a private clinic. I have seen also clinics for Tomatis sound therapy coming to my town from the Listening Center. It's another tool to help with learning problems. From: patty <pallygoo@...> Subject: [ ] Re: Nerve Regeneration Date: Tuesday, December 15, 2009, 12:07 AM  Well, she still is significantly lower cognitively than when she lost her skills, but she has improved, can talk some, make eye contact, take care of her general needs. But BEFORE her vaccine injury she could read, play, etc at an above average level. She also still has the hallucinations/ delusions that came with the injury but they are much more manageable. The clozaril made a big difference in her level of aggression, keeping her out of the institution and safely home with us. She is happier, on a more even keel. My feel is that the mercury damaged her nuerons, and now that we have removed a portion (hopefully most) of it, it's time to start healing those damaged neurons. She takes a prescription vitamin (8 a day, actually); EFAs, borage, sometimes yeast cleanse, sometimes rutin (for the bruising). Any input you have would be appreciated! Thanks - Patty > > > > Hello everyone, > > > > We've done chelation with dmsa and ala for a few years now, and I feel fairly certain that most of the mercury has been removed from my daughter's body. Now my question is, how can we facillitate regeneration of the nerves that were damaged by the mercury? > > > > Thanks, > > Patty > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2009 Report Share Posted December 16, 2009 coconut oil, used for massages helped with this for my daughter. elizabeth > > Hello everyone, > > We've done chelation with dmsa and ala for a few years now, and I feel fairly certain that most of the mercury has been removed from my daughter's body. Now my question is, how can we facillitate regeneration of the nerves that were damaged by the mercury? > > Thanks, > Patty > Quote Link to comment Share on other sites More sharing options...
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