Re: Updated CMT info at NIHDS thanks to Dr.

[Guest guest]

Gretchen and all,

I have to say that I am thankful also that Dr. admitted that some people

with CMT experience pain. I feel sometimes when reading others experience I

don't hear much mention of pain, and I feel like there is something more wrong

with me.

I had a baby in 1988, no narcotics pain meds during or after birth, just

ibuprophen.

I broke my ankle in 1998, again only ibuprophen.

But when it comes to nerve pain, I am lying in bed in a fetal position, moaning,

and wondering if I want to continue this way.

Now that my pan is zero, I am alive and thankful that there is something to

help. My pain doctor and I use several health products also, narcotics is just

a part of my regimen. And finally, we are successful.