Re: Osteo Arthritis and CMT

[Guest guest]

P.S. Joana,

I also have it in my back with deteriorating disc disease and Pagets

disease of the bone. I am on Neurontin and that helps my back pain because the

sciatic nerve is involved. But the pain in my hip knee and ankle nothing seems

to help.

Barb C.

[Guest guest]

Dear Barb C.

Thank you for your email ... I am very sorry to hear about your problem...I

really hope those injections will help you.

I know, we have to try anything when we have pain and disconfort.

Sometimes my pain gets better but the walking is a major problem I

feel. We have to be always willing to be positive and have strengh to carry on

no matter what!

All the best wishes to you my friend.

Take Care

Joana

[Guest guest]

Barb:

I have/had loss of bone in my front pelvis bone as well as loss in my legs and

pain in my lower back.

My doctor put me on Actonel, 35 mg pill once a week. It stops bone loss and

helps to rebuild bone. After a month I had no pain in hip while sitting and

lower back pain went away. It is prescribed for Padgets (I don't have).

Anyway I'm still on Actonel but can't get on bone density machine to see how I'm

doing. I did the bone density on my forearm and it was in the normal range.

I'm still taking it as I'm not walking and to keep bone mass you must do weight

bearing activities. Sitting is all I do and transferring and standing.

I feel like the pain is from losing the bone less structure putting pressure on

nerves. Anyway, this is what has helped me.

Donna B. in Texas

[Guest guest]

Thank you, Joana.

Barb C.

[Guest guest]

Thanks Donna B,

But my doctor seemed to think that I should be on it for 6 weeks.

Barb C.

[Guest guest]

Hi Donna B.,

I have been taking Fosamax,it is hard to know which one is better

than other. There is also another one called Evista , I wonder if someone has

being taking it ...It would be nice to know more.

Just to say that I stopped taking Fosamax for while, can you believe

that I forgot taken it? Oh dear...I must start to take it again...

I think I have been more than 3 months without fosamax...

Anyway, I will take my tablet tomorrow!

Best wishes

Joana

[Guest guest]

Hi, yourself, Joana, waaaaaaayyy over there !!!

Yes, it's real important to take this type of medication ON Time and

Continuously to have any affect. Also, there saying calcium with Vit. D., some

packages now of Actionel are include a calcium pill (500 mg.) so you won't

forget.

My diet has a lot of calcium and I just take the 500 mg. that's provided.

I hope you take care of yourself and take it slow until you get to the

appropriate doctors.

Donna B.

[Guest guest]

Dear Donna,

So nice to hear from you! Yes, I did take it yesterday the FOSAMAX.lol

Now, I have been taking another form of calcium so far ...the

calcium EAP2,my nutristionist told me that it would be much better

calcium for the nerves too...so now I just don't know regarding the

Calcichew with D3? I did not take the calcium prescribed from my GP

because it would be too much calcium, Donna.

I will need to find out more about the D3 vitamin. Well, I would love to hear

from you again Donna.

Have a Wonderful day my friend.

Bye bye from now.

Joana