Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Gretchen, I am sure you have heard this before but just wanted to let you know You are a Gift and I am thankful Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Gretchen, That is VERY BEAUTIFUL... Thanks again for posting it! I will print it and read again and again for while! God Bless Joana > > Just for today I will try to live through this day only and not > tackle my whole life problem at once. I can do something for 12 hours > that would appal me if I felt that I had to keep it up for a lifetime. > > Just for today I will be happy. This assumes to be true what Abraham > Lincoln said, that: " most folks are as happy as they make up their > minds to be. " > > Just for today I will adjust myself to what is and not try to adjust > everything to my own desires. I will take each day as it comes and > fit myself to it. > > Just for today I will try to strengthen my mind. I will study. I will > learn something useful. I will not be a mental loafer. I will read > something that requires effort, thought and concentration. > > Just for today I will exercise my soul in three ways: I will do > somebody a good turn, and not get found out; if anybody knows of it, > it will not count; I will do at least two things I don't want to do - > just for exercise; I will not show anyone that my feelings are hurt - > they may be hurt but today I will not show it. > > Just for today I will be agreeable. I will look as well as I can, > dress becomingly, talk low, act courteously, criticise not one bit, > not find fault with anything, and not try to improve or regulate > anybody but myself. > > Just for today I will have a programme. I may not follow it exactly > but I will have it. I will save myself from two pests - hurry and > indecision. > > Just for today I will have a quiet half-hour all by myself and relax. > During this half-hour, sometime, I will try and get a better > perspective of my life. > > Just for today I will be unafraid. Especially I will not be afraid to > enjoy what is beautiful and to believe that, as I give to the world, > so the world will give to me. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Gretchen: I love your 'Just for Today' post...it's not just relevant for those with CMT, or supporting those with CMT but also everyone with challenges in life. Last week the neurologist noted that Gavin probably has Roussy-Levy syndrome, basically CMT 1A with a hand tremor. While initially I was saddened, really we can absorb it, it's still CMT, just a bit different. He had a high fever with flu yesterday and his hands were shaking so hard he could hardly hold a cup. He also seems shaky when he first gets up in the morning. On the funny side, he asked me last week if he forgets to do what he's asked because of his CMT -lol- Nope that's just being a normal 6 year old, I told him! Thanks again Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Dear Joana, Just a note to say I'm sorry that you feel so rotten right now. I also live in the UK and the last couple of years I've really enjoyed reading your messages (and Donna from London's too) I remember how bright and bubbly you were before you went to South America and hate hearing that you're down. Although (allegedly) I have a different type of CMT (2) I seem to go through cycles of having good times and then some really bad times and its all linked to how physically well I feel and how much able I am to manage and get around. I just want to say hang in there - the good times will come round again, even if they may seem to take their time about it. Take care Fiona in Glasgow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Dear Joana, I'm sorry to hear your not feeling so well. It seems so hard to get out of bed when you hurt so much, and not sleeping tops it off. I too don't sleep at night, but I did get something from my doctor that really helps. I know with your outlook that things will turn around for you real soon. Try to keep that positive outlook and I know you have alot of friends praying for you also. Regards, Kathy in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Hi Joana, I hope you are feeling better today. Please do not worry about not posting. When you feel better you can always post then. Some days are just harder then others and before you know it you will have a really good day and that will make up for the bad days. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Dear Kathy, Thank you so much for your email...So kind!!! Sorry to hear that you are not 100% too. What are you taking to help you sleep? Are you doing exercises? Tell me more about you...I just started to take Rhodiola today...for the stress and anxiety, etc... I went to see my chiropractor this afternoon and he told me that my nerves around the pelvic area are too weak too unfortunatelly. I will see an orthopedist on the 22nd of this month and see if something can be done regarding the hips problems...it is really bad,and feels dislocated inside ..too hard to walk now. I am here trying to understand why this hips feels so bad , so sundenly Kathy? It does affect the whole legs and the way of walking it is so weirdo. Something is not right, but what is it then? Well, I need to have hope now. Katty feel free to email me here or at my other email address jponsara@... ... the way you do prefer ok? I am always here and I really hope things will improve for you too. Best wishes Joana in London Ps: Where are you in USA? When I will feel much better I will visit my family in Albuquerque ...lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Hi , Thanks a lot for your posting. Part of the reason I am not well it is to do with CMT and my hips??? I can tell you how difficulty has been for the last year...and nobody yet could explained the reason why is like that . That is what is more hard to take it...to come to an understanding. Yes, I will post more in the future. I would love to say Thanks a Lot to you ! Take Care Joana in London Quote Link to comment Share on other sites More sharing options...
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