ankle fusion input/advice needed

[Guest guest]

Hey Gang,

This is kinda cool and scary at the same time. I have felt so alone for so long!

I've only met one other person with CMT and she was just diagnosed and hasn't

had any trouble really. (ah the good 'ol days)

I was wondering if anyone has had their ankles fused or had a triple arthodesis

done? I was told in Nov 2005 that I was looking at the rest of my life in a

wheelchair. I cannot accept this. I have seen 6 Doctors, 3 agree that the Ankle

fusions are the best way to go and 3 opt for the triple. I was hoping to find

the name of an orthopaedic surgeon that knows about CMT as well...so far, no

luck.

This is such a huge decision, neither operation can be undone once it is done so

there's no " do overs " . I was always so active but now my activity level has

decreased in the last couple of years and I have developed arthritis in both

ankles which isn't helping the situation at all. This just seems so overwhelming

at times. Any input or advice would be greatly appreciated.

Thank you!

Hope