Welcome Mustafa

[Guest guest]

A very warm welcome to you, Mustafa and thanks for introducing yourself

to us. If you are unable to walk, AFOs on both legs might help you. As

for strengthening muscles, that depends. It depends on if you already

have atrophy. Right now atrophy cannot be reversed, but there have been

several new pieces of research that have shown (in animals models) that

it CAN be reversed. However, this is still in the experimental stages

and much more work needs to be done before human trials can begin.

Back to your muscles: Have you met with a psysiatrist or physical

therapist? This might be a good direction for you too go. Second to

that, look over our Files (the Vitamin C part) and also Vitamin E with

that. I am not saying that those vitamins can strengthen your muscles,

but we have heard from our members here that those with CMT 1A have

seen positive changes in their body.

Again, welcome and may you find help and hope here at !

~ Gretchen/Founder and Moderator of

[Guest guest]

Hello Mustafa,

Your English is plenty good enough. Mild exercise and stretching is very

important and needs to be done when young and developing muscle

growth. Later on it is important to maintaining as much strength as

possible, but that varies considerably with the severeness of the

disease. The general rule is that if you encounter prolonged aches and/or

tremors in the muscles, you are exercising too hard and need to back off.

It is the nature of the disease that you will never be able to attain

normal strength levels only those that are in accordance to your

capability. Finding that level of strength requires experimenting and

sensing when it is enough. I do not subscribe to pushing through on will power

alone as some people do. That is injurious and only for those who live for the

moment, again imho.

Since you have difficulty walking, I would suggest that you consult a

physical therapist, physiatrist, or rehabilitation doctor as Gretchen has

suggested, but only one who is familiar with CMT. That not being

available, MDA has booklets on exercises and perhaps some exercise

equipment with low force impact could help.

EdM from NH