Vitamin C

[Guest guest]

Hi ,

Let me explain a bit, then I'm sure will jump in too. Way back

in the Spring of 2004, we heard some amazing CMT 1A research news

from France. In a study/research project, using 30 generations of

mice, and certain amounts of Ascorbic Acid (which is Vitamin C), it

was discovered that CMT 1A could be arrested (stopped/cured). OK fine

for mice, they synthesize Vitamin C, humans do not, so that's why

many ers with 1A have been taking C in high doses, and

especially the timed-release doseages. No studies have been done YET

on C and CMT 1A in humans, but just this week in the messages, I

posted the news of a clinical trial that will start up next month and

end November 2007. So, go back in the posts to see that. It is an age-

specific project, only young persons 12-25, and only 12 of them will

be in the project.

So, back to your question, is Vitamin C good for CMT 1A persons? We

don't know that answer in regards to it arresting CMT all together.

What we have heard from ers these last 2 years is how their

fatigue has lifted, moving around is easier, and interestingly, now,

reports she is warmer in the winter.

You might want to go back in the archives and read forward from April

2004 to hear what people have to say about their Vitamin

C " experience " . Yes, in a way, CMT 1A persons who have taken it are

1) making their own CMT history and 2) providing us with a whole lot

of positive input to date.

In our Files section, there is a considerable amount of information

on CMT 1A and Vitamin C - but there are no specific medical

guidelines in existence on this planet that state what amounts and

types of C are or are not beneficial. We're literaly sitting on the

cutting-edge of a brave new therapy for complete CMT arrestment.

All the above aside, only YOU are the one that can make the decision

for yourself how much to take and if it is right or wrong.

The " medical advice " just isn't there yet specificically for CMT 1A.

I might also suggest that you consult your doctor about this and

print off the info from our Files.

When I look at the stuff docs gave me in the 60's for CMT - Ritalin,

Potassium, and later Physiotigmine, Vitamin C looks safe in

comparison, but remember, I don't have CMT 1A and this is not meant

as medical advice.

Hope this helps.

~ Gretchen