Re: hard time beine diagnosed

January 14, 2006

Hi Kim,

I was going to a doctor for 2 years and he knew I had bad pain in my feet, but

instead of trying to diagnose it, he just continued with the pain medication.

Eventually I woke up one day and couldn't use my right hand, thought I had a

stroke, went to the ER, and the Dr. there told me it was just a nerve palsey and

would go away in a couple days. Six months later, it finally did.

In the mean time I went to a chiropractor, to no avail, but someone told me

about a neurologist in town and within 15 minutes of our conversation, she said

she thought I had CMT (she saw the hammertoes, high instep, etc ) and wanted to

give me the nerve test, but my insurance wouldn't cover it.

She was nice enough to call my house a week later and took the loss of money and

did the test. I do have CMT1A, and like you said

it answered so many questions, and more than that, made sense of all the

symptoms I had. On this board you can usually run into someone who lives near a

good neurologist. It has helped me tremendously. Just keep looking. It will

all work out.

Take care,

Recommended Posts