Creatine

[Guest guest]

Hi!

I was just wondering if you have any information or know of a

web site that could help me.My son is thinking about taking creatine

to help his muscles. I was just wondering what affect it had on people

with CMT.Any and all information would be greatful. Thank-you very

much.

Sherry

[Guest guest]

,

I participated in a research study here at WVU hospitals which was a year long

study using creatine and exercise. It did help. It built up my muscles and I had

less pain while using the creatine. I was on very small amounts of creatine

though and some folks in the study was given a placebo.I was one of the ones who

got the creatine. My children are also doing a year long exercise research study

because of the fact their aren't many studies on children with CMT.

My children are only doing exercises and a neat game called Dance Dance

Revalution. It has helped them somewhat with pain and have really built up thier

muscles. But no creatine is used. I'm not sure for myself if it was the creatine

and the exercise or just the exercise that helped me.

But I can tell you, once you stop the creatine, if you don't continue to

exercise, then the muscle that was gained will go away and it turned flabby in

my case.

Kathy

[Guest guest]

Thank you Merril,

I will be really careful letting them use it.

How is your son with CF doing?

[Guest guest]

I have heard of great results with this. However, I also have a child with

Cystic Fibrosis and I asked his dietician about Creatine and she said it was

hard on the Kidneys and Liver and wouldn't let us put him on it.

Merril