Guest guest Posted March 15, 2006 Report Posted March 15, 2006 Dear ers, There is a newspaper article floating around the country that has erroneus CMT information in it. The article is titled " Could Someone You Know Be Suffering from a Neurological Disorder? " It states that CMT is a 'cousin' to MD. This is NOT true! CMT is NOT a 'form' of MD or 'related' to it. If you need further clarification on the differences between CMT, MD and MS, please look in our Files. We are all aware that the MDA includes persons with CMT for help with AFOs, etc. CMT falls under the 'umbrella' of over 40 neuromuscular disorders that the MDA helps. Again, this does NOT mean CMT is a 'form', 'cousin', or 'related to' MD. This article also states that CMT is the 'most common inherited neuropathy'. It is NOT. (diabetes is) If this article appears in your newspaper, please contact the Editor and send the correct information, or contact me and I can provide more information and correct links for you. CMT certainly can use all the good press we can get. However, misleading or untruths do not do US justice and continue to confuse people. ~ Gretchen Quote
Guest guest Posted March 15, 2006 Report Posted March 15, 2006 In general, though, is the article good? I mean, does saying that CMT is a cousin to MD, while inaccurate, cause any problems for us or the community at large? And I've always read that CMT is the most common inherited neuropathy myself...Diabetes may be a more commonly inherited condition but it doesn't always result in neuropathy, does it? GfijiG6@... wrote: > Dear ers, > > There is a newspaper article floating around the country that has > erroneus CMT information in it. The article is titled " Could Someone > You Know Be Suffering from a Neurological Disorder? " > > It states that CMT is a 'cousin' to MD. This is NOT true! CMT is NOT > a 'form' of MD or 'related' to it. If you need further clarification on > the differences between CMT, MD and MS, please look in our Files. We are > all aware that the MDA includes persons with CMT for help with > AFOs, etc. CMT falls under the 'umbrella' of over 40 neuromuscular > disorders that the MDA helps. Again, this does NOT mean CMT is > a 'form', 'cousin', or 'related to' MD. > > This article also states that CMT is the 'most common inherited > neuropathy'. It is NOT. (diabetes is) > > If this article appears in your newspaper, please contact the Editor > and send the correct information, or contact me and I can provide more > information and correct links for you. > > CMT certainly can use all the good press we can get. However, > misleading or untruths do not do US justice and continue to confuse > people. > > ~ Gretchen > > > > > > > > > Quote
Guest guest Posted March 16, 2006 Report Posted March 16, 2006 Hi Gretchen, I have often heard (from many different sources) that CMT is the most common form of INHERITED peripheral neuropathy. I didn't realize that all types of diabetes are inherited? Warm Wishes, caution Dear ers, There is a newspaper article floating around the country that has erroneus CMT information in it. The article is titled " Could Someone You Know Be Suffering from a Neurological Disorder? " It states that CMT is a 'cousin' to MD. This is NOT true! CMT is NOT a 'form' of MD or 'related' to it. If you need further clarification on the differences between CMT, MD and MS, please look in our Files. We are all aware that the MDA includes persons with CMT for help with AFOs, etc. CMT falls under the 'umbrella' of over 40 neuromuscular disorders that the MDA helps. Again, this does NOT mean CMT is a 'form', 'cousin', or 'related to' MD. This article also states that CMT is the 'most common inherited neuropathy'. It is NOT. (diabetes is) If this article appears in your newspaper, please contact the Editor and send the correct information, or contact me and I can provide more information and correct links for you. CMT certainly can use all the good press we can get. However, misleading or untruths do not do US justice and continue to confuse people. ~ Gretchen Quote
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