MDA appointment questions

[Guest guest]

There is no reason why you should need those tests done again, since

they were done very recently. Don't put yourself through any more

sh**. Whether or not the DNA genetic test is now included in the

MDA 'testing' is news to me.

Treatment from MDA? Let's see, about all the 'treatment' I had was

the start of measuring my legs for braces. I left while the brace

person went to the back office.

I would have loved 'treatment' for my tremors then - which is why my

private neuro suggested I go there. Didn't get any tremors treatment

either.

I found more 'treatment' through private neurologists.

A 2nd opinion? Well, if you feel you need one, then go, and get those

tests redone.

My MDA appointment was scheduled for 9 am. I arrived at 8:50 am. I

sat there until 11:45 am when all of a sudden the bracemaker came out

and without saying a word, immediately started to measure me for

braces. Braces are not considered a 'treatment' where I am; but

something like dietary/nutrition guidelines for neuromuscular disease

is. Have you started taking Vitamin C or E of other supplements?

~ Gretchen

[Guest guest]

I have had all great appointments at the MDA clinic. Yes, I wear AFO's but

I wore them before I ever went to clinic and I know I definately needed them

because I kept breaking bones and tearing tendons. They have helped me with

whatever I needed help with. I would strongly encourage you to go. I don't

think the tests are necessary since yours were so recent. I love my MDA team.

Jen