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journalism about CMT

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It is bad journalism. On a website for CMT about CMT where people go to learn

about CMT someone without CMT has written bad information about CMT. I just feel

it's awful.

So misleading and untrustworthy. Darn right scary for some people. I have

teachers that look at as reference for my CMT children. Bad journalism

undoes all my pioneering at the school district for other kids with CMT that

will come their way.

Of course we do not know how it will effect everyone that reads the article but

if I was in a place of depression and I read that I would be really freaked out.

I have a 2nd cousin with MD that has struggled so much more then I have. To link

him and his courageous battle with CMT is doing him an injustice.

He has MD unrelated to CMT. Now that is a big deal. Hope I didn't sound too

crazy.

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