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Dilantin

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,

Even way back in the CMTI newsletter in the 1980's, Dilantin

(Phenytoin) was on the Toxic Medication list. Here's a few reasons I

know of: in people with CMT it can cause nervousness, muscle

twitching/tremors and most important, difficulty coordinating body

movements. (balance problems)

Second to that, Dilantin has some bad interractions with other

medications: Tylenol, Advil, antacids, blood thinners,valium,

depression medications, contraceptives, sedatives, Vitamin B6 and

tranquilizers.

~ Gretchen

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Like my mother needs more problems :) She's going to see the neurologist who

prescribed it for her next week and I'm going with her so we'll talk to him

about it. Funny though that two different neurologists that she sees KNOWS that

she's on Dilantin and that she has CMT but didn't see any problems with it.

I probably didn't notice it before because no one I knew was taking it.

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  • 1 year later...

When I asked the neuro about it, he didn't say very much. I will be seeing him

again on monday but am seriously having doubts about Drs right now. I feel like

I keep swimming upstream, its extremely

frustrating!!

thanks for your help

Lenore

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